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After Treatment

Late Effects and Survivorship

Educational Late Effects

Originally published on November 11, 2009
Most recently updated on April 10, 2013

Unfortunately, survivors of childhood brain tumors frequently develop problems in the areas of intellectual ability, academic achievement, memory, and attention. Although many different factors are probably responsible for these changes, including tumor location and surgery, age (younger than 7 years) at diagnosis and treatment with radiation therapy are the major risk factors for neurocognitive impairments.

Medical Late Effects

Originally published on November 10, 2009
Most recently updated on April 10, 2013

Late effects span a spectrum from mild and easily treatable problems (such as an underactive thyroid) to, on rare occasions, serious and life-threatening problems (a second, new cancer).  One way to determine your risk for late effects is through the Oncolink Web site.  On the site, a person can create a survivorship care plan based on medical history.

Brain Tumor Survivor Late Effects Clinics

Originally published on November 10, 2009
Most recently updated on December 18, 2013

The following is a list of comprehensive late effects clinics. These clinics follow the Children’s Oncology Group (COG) long-term guidelines for survivors of childhood, adolescent and young adult cancer. They address the medical, educational, and quality of life issues faced by brain tumor survivors.

There are two important reasons that you should participate in follow-up at a late effects clinic:

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