- In Treatment
- After Treatment and Survivorship
- CBTF Publications
- Loss, Grief and Bereavement
Hope loved the color lime green! So consequently since her diagnosis we too love everything lime green! I wonder every moment of every day what she would be like now, what she would be doing, how she would look. Hope was born in Seoul, South Korea on June 26th, 1997. She was a month early and was a teeny 4lbs but grew to 16 lb 12 oz before coming home to us on January 23, 1998. Hope was the answer to our prayers. She completed us a family. Big brother J.D. could not have been more excited!
As life would have it we would take things for granted. The love, the laughter, the good times and the bad, just the normalacy of it all. Life was good. We were happy. On July 29th, 2009 just 4 weeks after Hope's 12th birthday our lives were turned upside down. Hope was diagnosed with DIPG and if you are in this community I don't need to explain what that means. Hope was brave, funny, silly, sassy, courageous, intelligent, compassionate, empathetic, too old for her own good, and so sweet and gentle. Hope wanted to be a nurse, doctor, or pastor and she could have done anything she set her sights on. Our Asian Princess earned her wings on March 10, 2010 just 224 days after diagnosis. We all have a hole in our hearts in the shape of our Hope. Our hearts will never be complete again. We won't move on or get over her loss. We will not be held hostage by our grief. We will do our best to help others remember what a wonderful life Hope led and the potential she had yet to experience.
Some day there will be better treatments and ultimately a cure. Hope we will not forget. We will not rest. We love you up to the sky and back again.