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CBTF Family Newsletter

March 16, 2015
Children's Brain Tumor Foundations distributes an e-newsletter to our families to give updates on current happenings and to let you know about upcoming events and activities.  We also highlight patient, survivor and family accomplishments and blogs. MARCH 2015Being Newly...

Camps and Wish Granting Organizations

July 16, 2014
The following are camps and wish granting resources that are offered to pediatric cancer survivors and their families.CampsCamp Mak-a-DreamCamp Mak-a-Dream offers a cost free, medically supervised retreat in Montana to children and families affected by cancer.  There are diagnosis and age...

Information and General Financial Aid Resources

May 8, 2014
The following is a list of organizations and government funded programs that offer information and support for families dealing with cancer.  They cover a wide range of needs including medical equipment coverage, costs of travel, utility assistance and more. Some of these are specific to...

Travel and Lodging

March 7, 2014
Air TransportationOccasionally children must travel great distances to receive appropriate, specialized medical care. Many airlines have courtesy fares for a child and accompanying parent. Social workers may assist you and provide this information, but it may be helpful to contact each individual...


August 16, 2013
These publications are peer reviewed journals addressing various disciplines of clinical and psycho-social care of children and families, including those with brain tumors and cancer.  They are for both professionals and patient/caregiver audiences. Please note that most journals do not...


August 14, 2013
The following are a list of supports by specific states and areas, as well as specific interenet support groups.

Questions to Ask Your Child's Doctor

April 10, 2013
Keeping track of new information after you child has been diagnosed with a brain tumor can be a challenge.  Knowing what's important and remembering everything you are told can present challenges.  The following are a list of suggested questions you can ask your child's doctor at...

Craniopharyngioma Defined

April 10, 2013
A craniopharyngioma is a slow-growing tumor that can grow for many years before being found.

Medulloblastomas Defined

April 10, 2013
Medullablastomas are fast-growing tumors that form in brain cells in the cerebellum. The cerebellum is at the lower back part of the brain between thecereand the brain stem. The cerebellum controls movement, balance, and posture.

Brain Stem Gliomas Defined

April 10, 2013
A glioma is a tumor that grows from glial cells, a supportive cell in the brain.  Brain stem glioma grows specifically in the brain stem which is the part of the brain that controls many of the body’s basic functions, such as motor skills, sensory activity, coordination and walking, the...

Optic Nerve Glioma Defined

April 10, 2013
A glioma is a tumor that grows from glial cells, which are supportive cells in the brain.  Optic nerve gliomas grow specifically in the optic nerve which is the part of the brain that connects the eye to the visual center of the brain.  Optic nerve glioma can effect one or both optic...

Utility Assistance

December 6, 2012
The following is a list of resources that can help with utlility assistance for certain low-income families. Campaign for Low Income Energy AssistanceProvides national assistance for energy needsNational Energy Assistance Director's Association: State Energy Assistance Directors...

End to Rescission, and More Good News

May 5, 2010
Americans are already starting to see the benefits of health care reform. The new law requires health insurance companies — starting in September — to end their most indefensible practice: rescinding coverage after a policyholder gets sick. In recent days insurers and their trade...

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