American Cancer Society
Phone: 800-ACS-2345
www.cancer.org
Association of Cancer Online Resources
www.acor.org
Brain & Neuro Surgery Information Center
www.brain-surgery.com
Cancer Care, Inc.
Phone: 800-813-HOPE
www.cancercare.org...
Hotel Lodging
If you need to plan for accommodations, speak to the social worker or visitor services department at the hospital where you need to be. Some hotel chains provide rooms to a family at no charge if a child must go into the hospital for an early-morning or overnight procedure. Local...
Occasionally children must travel great distances to receive appropriate, specialized medical care.
Air Transportation
Many airlines have courtesy fares for a child and accompanying parent. Social workers may assist you and provide this information, but it may be helpful to contact each individual...
Children's Brain Tumor Foundation will partner with Camp Mak-a-Dream for the second annual Heads Up Conference (HUC). HUC will take place August 13-18, 2009.
We expect approximately forty participants from across the country to participate in this exciting experience. Best of all, the conference...
The CBTF tradition of parents reaching out, offering support and information to others, so no one needs to be alone, was the reason the F2F Bag program was developed in 2004 (originally "Parent-to-Parent"). Board Member Bonnie Adlman suggested CBTF create a F2F Bag that included...
Camp Sunshine Bereavement Camp
A therapeutic retreat for bereaved families in Casco, Maine.
www.campsunshine.org
207-655-3800
Chai Lifeline Donald Alan Harris Healing Hearts Bereavement Program
Annual retreats and counseling services helping families who have lost a child
http://www....
The following books may be helpful to parents, siblings, grandparents, family members and friends who have lost a loved one. Please note that we are not familiar with every book on this list. However, all books have been recommended by parents and professionals. In addition, we have more...
Parker’s Brain Storm
If you are interested in watching the story of Parker’s Brain Storm come alive by viewing each page while listening to the character’s speak, please click here.
International Internet California Colorado Connecticut Florida Georgia Illinois Iowa Maine Maryland Massachusetts Michigan New Jersey New York North & South Carolina Ohio Oregon Pennsylvania Tennessee Texas Virginia
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A Resource Guide for Parents of Children with Brain or Spinal Cord Tumors
Our little yellow book is our most recognized support service. Physicians, social workers, nurses, and parents alike describe our Resource Guide as an important information source for families upon learning of their child...
American Council on Education
www.acenet.edu
A guide to education legislation in Washington and local education news and events.
Andre Sobel River of Life Foundation
www.andreriveroflife.org
The organization honors young cancer survivors and enables them to fulfill a cherished desire by providing...
The pediatric social worker is a key member of your child’s health care team. One of the things your social worker can do is to help you explore sources of financial aid for which your child or family may be eligible. The hospital financial office may also be able to help you make credit...
The Dream Foundation
Phone: (805)-564-2131
www.dreamfoundation.com
Fairygodmother Foundation
Phone: (773)-388-1160
www.fairygodmother.org
Make-A-Wish Foundation
Phone: 800-722-WISH
www.wish.org
National
Campaign for Low Income Energy Assistance
Provides national assistance for energy needs
www.liheap.org
CITGO's Low-Cost Heating Oil Progam
Provides national assistance for energy needs
www.citgo.com
Most high school seniors will agree that finding the perfect college is a cumbersome, intimidating task. Those students who have either a physical or learning disability have the extra burden of finding a college with the appropriate support staff and accommodations necessary willing to meet the...
Assistive Technology News Portal
www.axistive.com
The web site provides new information and product reviews on assistive technology for learning disabilities.
Band-Aides and Blackboards
www.lehman.cuny.edu/faculty/jfleitas/bandaides/
This is a web site designed to help kids, teens, and adults...
There can often be a communication gap between the home and the many education staff members who work with your child. To ensure that each staff member is alerted to either your child’s special needs or those of his or her siblings, a communication form can be developed between you and school...
2bMe
This site is excellent for teenagers, especially ages 13-16 years old. It has lots of helpful tips on hair loss, wigs, skin care, and appearance
American Cancer Society
They have online groups for childhood and young adult survivors.
Dealing with a brain tumor when you are a teenager or a young adult, brings about a whole new set of challenges. Whether you were diagnosed when you were a child, a teenager or a young adult, these resources may help you. each site and group has its own personality. Find a group you can relate to....
Association of Cancer Online Resources
http://www.acor.org/support.html
Low grade Glioma List
LGgliomakids-subscribe@yahoogroups.com
Medulloblastoma Mailing List
medulloblastoma-subscribe@yahoogroups.com
Pediatric Tumors Mailing List
pediatricbraintumors-subscribe@yahoogroups.com
Optic Glioma...
Children’s Hospice International
Phone: 800-2-4-CHILD
www.chionline.org
Compassionate Friends
Phone: (630)-990-0010
Fax: (630)-990-0246
www.compassionatefriends.org
The Dougy Center for Grieving Children
Phone: (503)-775-5683
Fax: (503)-777-3097
www.dougy.org
CBTF is looking for young adult brain tumor survivors to participate in a study looking at Employment Issues and Concerns you may have. If you are interested, please cal Stacia Wagner at 866-228-4673.
Center Watch
www.centerwatch.com
CenterWatch is a wonderful source of news, directories, analysis, and proprietary market research for clinical research professionals. The website provides proprietary data and informational analysis on clinical trials through a variety of newsletters, books,...
