Need answers or support?  Call 866-228-4673

Resources

CBTF Family Newsletter

August 21, 2014
Children's Brain Tumor Foundations distributes an e-newsletter to our families to give updates on current happenings and to let you know about upcoming events and activities.  We also highlight patient, survivor and family accomplishments and blogs.   August 2014 CBTF:...

Camps and Wish Granting Organizations

July 16, 2014
The following are camps and wish granting resources that are offered to pediatric cancer survivors and their families.CampsCamp Mak-a-DreamCamp Mak-a-Dream offers a cost free, medically supervised retreat in Montana to children and families affected by cancer.  There are diagnosis and age...

CBTF Professional Newsletter

June 18, 2014
CBTF circulates a quarterly professional newsletter to keep the professionals we work with up to date with our current programs, research and projects. Current Issue:Spring 2014Previous Issues: Winter 2014Summer 2013

Information and General Financial Aid Resources

May 8, 2014
The following is a list of organizations and government funded programs that offer information and support for families dealing with cancer.  They cover a wide range of needs including medical equipment coverage, costs of travel, utility assistance and more. Some of these are specific to...

AYA Survivor Resources

April 23, 2014
Dealing with a brain tumor when you are a teenager or a young adult brings about a whole new set of challenges. Whether you were diagnosed when you were a child, a teenager or a young adult, these resources may help you.

Travel and Lodging

March 7, 2014
Air TransportationOccasionally children must travel great distances to receive appropriate, specialized medical care. Many airlines have courtesy fares for a child and accompanying parent. Social workers may assist you and provide this information, but it may be helpful to contact each individual...

Bereavement Support Groups, Programs and Resources

February 18, 2014
 *Please Note: All lists of resources provided by CBTF include information gained from general research. This list does not imply endorsement.  

Scholarship and Education Information

February 14, 2014
The following resources can help survivors locate scholarships and find pertinent information regarding educational needs that may be unique to them. Scholarships are listed on order of their deadline. Please note that some may be limited to certain regional areas.Scholarship Resources:

Clinical Trial Resources

January 22, 2014
The following are either clinical trial resources or databases to help connect you with current clinical trials. Center WatchCenterWatch does not run clinical trials but is a database to find current trials.ClinicalTrials.gov ClinicalTrials.gov is a registry and results database of publicly...

Brain Tumor Survivor Late Effects Clinics

December 18, 2013
The following is a list of comprehensive late effects clinics. These clinics follow the Children’s Oncology Group (COG) long-term guidelines for survivors of childhood, adolescent and young adult cancer. They address the medical, educational, and quality of life issues faced by brain tumor...

Brain Tumor Organizations

September 18, 2013
The following are a list of resources that are available to address the needs of brain tumor patients and families.  They cover topics such as awareness, advocacy, education and support.  Some of them are region specific.

JOURNALS

August 16, 2013
These publications are peer reviewed journals addressing various disciplines of clinical and psycho-social care of children and families, including those with brain tumors and cancer.  They are for both professionals and patient/caregiver audiences. Please note that most journals do not...

Support

August 14, 2013
The following are a list of supports by specific states and areas, as well as specific interenet support groups.

Understanding Health Insurance

August 7, 2013
Navigating the health insurance system with a child who is newly diagnosed with a brain tumor can be overwhelming. The following resources offer information about many of the questions you may have as well as options for low-income families and the uninsured. 

Teen Resources

August 7, 2013
2bMeThis site is excellent for teenagers, especially ages 13-16 years old. It has lots of helpful tips on hair loss, wigs, skin care, and appearanceAmerican Cancer SocietyASC has online groups for childhood and young adult survivors.ChemoCare Head Wear

Parker's Brain Storm

April 10, 2013
Parker’s Brain StormIf you are interested in watching the story of Parker’s Brain Storm come alive by viewing each page while listening to the character’s speak, please click here.

Financial Assistance for Bereaved Families

April 10, 2013
Financial AssistanceThe following list of organizations may provide financial assistance toward funeral and burial expenses Andre Sobel River of Lifewww.andreriveroflife.org Catastrophic Illness in Children Relief Fundhttp://www.mass.gov/cicrf/ 

Questions to Ask Your Child's Doctor

April 10, 2013
Keeping track of new information after you child has been diagnosed with a brain tumor can be a challenge.  Knowing what's important and remembering everything you are told can present challenges.  The following are a list of suggested questions you can ask your child's doctor at...

Utility Assistance

December 6, 2012
The following is a list of resources that can help with utlility assistance for certain low-income families. Campaign for Low Income Energy AssistanceProvides national assistance for energy needsNational Energy Assistance Director's Association: State Energy Assistance Directors...

Peer to Peer (P2P) Bag Program

December 3, 2012
The CBTF tradition of parents reaching out, offering support and information to others, so no one needs to be alone, was the reason the P2PBag program was developed in 2004. Board Member Bonnie Adlman suggested CBTF create a P2P Bag that includes information and supplies she felt would have been...

Employment Resources

December 3, 2012
Looking for a job can be intimidating.  If you are in need of some form of accommodations in order to do your job, asking for them can be embarrassing and may feel awkward.  Here are some resources that will let you know what your rights are, give you ideas on modifications, and help you...

Books on End of Life, Loss, Grief, and Bereavement

July 24, 2012
The following books may be helpful to parents, siblings, grandparents, family members and friends who have lost a loved one. Please note that we are not familiar with every book on this list. However, all books have been recommended by parents and professionals. When possible, we included a...

Resource Guide

April 4, 2012
A Resource Guide for Parents of Children with Brain or Spinal Cord Tumors Our little book is our most recognized support service. Physicians, social workers, nurses, and parents alike describe our Resource Guide as an important information source for families upon learning of their child’s...

Support Partners

March 15, 2012
Children's Brain Tumor Foundation provides families with educational information, various types of resources, and referrals to other support services they may need. We partner with different organizations to strengthen our community and build the support networks available for families....

National Association for Proton Therapy

October 20, 2011
We often hear questions pertaining to proton therapy and therefore we wanted to provide members of the CBTF community with a resource to provide you with additional information on proton therapy. The National Association for Proton Therapy (NAPT) is a non-profit organization supported by...

©2009 Children's Brain Tumor Foundation.    274 Madison Avenue Suite 1004 New York, NY 10016    (866) 228-4673    info@cbtf.org

Privacy Policy   |   Site Map
 

X
Loading