The pediatric social worker is a key member of your child’s health care team. One of the things your social worker can do is to help you explore sources of financial aid for which your child or family may be eligible. The hospital financial office may also be able to help you make credit...
We often hear questions pertaining to proton therapy and therefore we wanted to provide members of the CBTF community with a resource to provide you with additional information on proton therapy. The National Association for Proton Therapy (NAPT) is a non-profit organization supported by...
Dealing with a brain tumor when you are a teenager or a young adult, brings about a whole new set of challenges. Whether you were diagnosed when you were a child, a teenager or a young adult, these resources may help you. each site and group has its own personality. Find a group you can relate to....
GiveForward (http://www.giveforward.com/) empowers friends and family to provide emotional and financial support to loved ones while they navigate a medical crisis. A GiveForward page makes fundraising for out-of-pocket expenses like co-pays, travel and lodging, and alternative treatments...
Parker’s Brain StormIf you are interested in watching the story of Parker’s Brain Storm come alive by viewing each page while listening to the character’s speak, please click here.
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The following books may be helpful to parents, siblings, grandparents, family members and friends who have lost a loved one. Please note that we are not familiar with every book on this list. However, all books have been recommended by parents and professionals. When possible, we included a...
End-of-Life and Palliative Care Resources
Children’s Hospice International
www.chionline.org
The Dougy Center for Grieving Children
www.dougy.org
Get Palliative Care
Financial Assistance
The following list of organizations may provide financial assistance toward funeral and burial expenses
Andre Sobel River of Life
www.andreriveroflife.org
Catastrophic Illness in Children Relief Fund
http://www.mass.gov/cicrf/
The CBTF tradition of parents reaching out, offering support and information to others, so no one needs to be alone, was the reason the F2F Bag program was developed in 2004 (originally "Parent-to-Parent"). Board Member Bonnie Adlman suggested CBTF create a F2F Bag that included...
American Brain Tumor Association
The American Brain Tumor Association (ABTA) provides critical funding to researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, with the ultimate goal of finding a cure. The ABTA is also the recognized resource for comprehensive...
Occasionally children must travel great distances to receive appropriate, specialized medical care.
Air Transportation
Many airlines have courtesy fares for a child and accompanying parent. Social workers may assist you and provide this information, but it may be helpful to contact each individual...
American Cancer Society
Phone: 800-ACS-2345
www.cancer.org
Association of Cancer Online Resources
www.acor.org
Brain & Neuro Surgery Information Center
www.brain-surgery.com
Cancer Care, Inc.
Phone: 800-813-HOPE
www.cancercare.org...
Hotel Lodging
If you need to plan for accommodations, speak to the social worker or visitor services department at the hospital where you need to be. Some hotel chains provide rooms to a family at no charge if a child must go into the hospital for an early-morning or overnight procedure. Local...
Children's Brain Tumor Foundation will partner with Camp Mak-a-Dream for the second annual Heads Up Conference (HUC). HUC will take place August 13-18, 2009.
We expect approximately forty participants from across the country to participate in this exciting experience. Best of all, the conference...
A Resource Guide for Parents of Children with Brain or Spinal Cord Tumors
Our little yellow book is our most recognized support service. Physicians, social workers, nurses, and parents alike describe our Resource Guide as an important information source for families upon learning of their child...
The Dream Foundation
Phone: (805)-564-2131
www.dreamfoundation.com
Fairygodmother Foundation
Phone: (773)-388-1160
www.fairygodmother.org
Make-A-Wish Foundation
Phone: 800-722-WISH
www.wish.org
National
Campaign for Low Income Energy Assistance
Provides national assistance for energy needs
www.liheap.org
CITGO's Low-Cost Heating Oil Progam
Provides national assistance for energy needs
www.citgo.com
Most high school seniors will agree that finding the perfect college is a cumbersome, intimidating task. Those students who have either a physical or learning disability have the extra burden of finding a college with the appropriate support staff and accommodations necessary willing to meet the...
Assistive Technology News Portal
www.axistive.com
The web site provides new information and product reviews on assistive technology for learning disabilities.
Band-Aides and Blackboards
www.lehman.cuny.edu/faculty/jfleitas/bandaides/
This is a web site designed to help kids, teens, and adults...
There can often be a communication gap between the home and the many education staff members who work with your child. To ensure that each staff member is alerted to either your child’s special needs or those of his or her siblings, a communication form can be developed between you and school...
