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In Treatment

Preparing for Surgery

April 10, 2013
Your child’s neurosurgeon will go over the precise details of what will take place during your child’s surgery. It is important, for several reasons, that you clearly understand what is going to take place. Not only are you going to be asked to give informed consent by signing the...

General Hints

April 10, 2013
Depending on what type of brain tumor your child has, you may be experiencing long hospital stays. A hospital environment can seem intimidating at first, but we hope the hints we provide here will help you and your child feel more comfortable. Both of you need to feel as comfortable as possible in...

Getting a Second Opinion

April 10, 2013
Not everyone wants or requires a second opinion, but it can be very reassuring, and no doctor should be insulted by your requesting to consult another doctor about your child’s life and well-being. Opinions may not, of course, be of equal value. Try to obtain them from pediatric specialists...

Questions to Ask Your Child's Doctor

April 10, 2013
Keeping track of new information after you child has been diagnosed with a brain tumor can be a challenge.  Knowing what's important and remembering everything you are told can present challenges.  The following are a list of suggested questions you can ask your child's doctor at...

Ependymomas Defined

April 10, 2013
Ependymoma belongs to a group of brain tumors called gliomas. A glioma is a tumor that grows from a glial cell, which is a supportive cell in the brain. Ependymoma can occur in any part of the brain or spine, but most commonly occurs in the cerebrum, the largest part of the brain. Ependymoma start...

Craniopharyngioma Defined

April 10, 2013
A craniopharyngioma is a slow-growing tumor that can grow for many years before being found.

Medulloblastomas Defined

April 10, 2013
Medullablastomas are fast-growing tumors that form in brain cells in the cerebellum. The cerebellum is at the lower back part of the brain between thecereand the brain stem. The cerebellum controls movement, balance, and posture.

Brain Stem Gliomas Defined

April 10, 2013
A glioma is a tumor that grows from glial cells, a supportive cell in the brain.  Brain stem glioma grows specifically in the brain stem which is the part of the brain that controls many of the body’s basic functions, such as motor skills, sensory activity, coordination and walking, the...

Optic Nerve Glioma Defined

April 10, 2013
A glioma is a tumor that grows from glial cells, which are supportive cells in the brain.  Optic nerve gliomas grow specifically in the optic nerve which is the part of the brain that connects the eye to the visual center of the brain.  Optic nerve glioma can effect one or both optic...

Utility Assistance

December 6, 2012
The following is a list of resources that can help with utlility assistance for certain low-income families. Campaign for Low Income Energy AssistanceProvides national assistance for energy needsNational Energy Assistance Director's Association: State Energy Assistance Directors...

National Association for Proton Therapy

October 20, 2011
We often hear questions pertaining to proton therapy and therefore we wanted to provide members of the CBTF community with a resource to provide you with additional information on proton therapy. The National Association for Proton Therapy (NAPT) is a non-profit organization supported by...

End to Rescission, and More Good News

May 5, 2010
Americans are already starting to see the benefits of health care reform. The new law requires health insurance companies — starting in September — to end their most indefensible practice: rescinding coverage after a policyholder gets sick. In recent days insurers and their trade...

Outline from Elizabeth Klein - 2004

November 17, 2009
Psychosocial Impact and Community Reintegration Presented by Libby Klein General concepts. There are 26,000 brain tumor survivors in the USA today (CBTRUS) According to the IOM report on childhood cancer survivorship “cognitive impairments such as learning disorders...

Education

November 12, 2009
Cranial radiation, brain surgery, and some chemotherapeutic agents can compromise cognitive and/or sensory functions and may result in learning difficulties. Special education services may be appropriate for children whose brain tumor treatment seriously interferes with education and learning.

Going Home

November 10, 2009
Preparation and Transition When to Call Your Child’s Doctors Medical Expenses, Insurance, and Financial Assistance Nutrition Changes in Physical Ap

At The Hospital

November 10, 2009
Following are a few articles to help deal with hospital related issues.

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