Not everyone wants or requires a second opinion, but it can be very reassuring, and no doctor should be insulted by your requesting to consult another doctor about your child’s life and well-being. Opinions may not, of course, be of equal value. Try to obtain them from pediatric specialists...
Keeping track of new information after you child has been diagnosed with a brain tumor can be a challenge. Knowing what's important and remembering everything you are told can present challenges. The following are a list of suggested questions you can ask your child's doctor at...
Ependymoma belongs to a group of brain tumors called gliomas. A glioma is a tumor that grows from a glial cell, which is a supportive cell in the brain. Ependymoma can occur in any part of the brain or spine, but most commonly occurs in the cerebrum, the largest part of the brain. Ependymoma start...
Medullablastomas are fast-growing tumors that form in brain cells in the cerebellum. The cerebellum is at the lower back part of the brain between thecereand the brain stem. The cerebellum controls movement, balance, and posture.
A glioma is a tumor that grows from glial cells, a supportive cell in the brain. Brain stem glioma grows specifically in the brain stem which is the part of the brain that controls many of the body’s basic functions, such as motor skills, sensory activity, coordination and walking, the...
A glioma is a tumor that grows from glial cells, which are supportive cells in the brain. Optic nerve gliomas grow specifically in the optic nerve which is the part of the brain that connects the eye to the visual center of the brain. Optic nerve glioma can effect one or both optic...
The following is a list of resources that can help with utlility assistance for certain low-income families. Campaign for Low Income Energy AssistanceProvides national assistance for energy needsNational Energy Assistance Director's Association: State Energy Assistance Directors...
The following are camps and wish granting resources that are offered to pediatric cancer survivors and their families.CampsCamp Mak-a-DreamCamp Mak-a-Dream offers a cost free, medically supervised retreat in Montana to children and families affected by cancer. There are diagnosis and age...
We often hear questions pertaining to proton therapy and therefore we wanted to provide members of the CBTF community with a resource to provide you with additional information on proton therapy. The National Association for Proton Therapy (NAPT) is a non-profit organization supported by...
Americans are already starting to see the benefits of health care reform. The new law requires health insurance companies — starting in September — to end their most indefensible practice: rescinding coverage after a policyholder gets sick. In recent days insurers and their trade...
Psychosocial Impact and Community Reintegration
Presented by Libby Klein
General concepts.
There are 26,000 brain tumor survivors in the USA today (CBTRUS)
According to the IOM report on childhood cancer survivorship “cognitive impairments such as learning disorders...
Cranial radiation, brain surgery, and some chemotherapeutic agents can compromise cognitive and/or sensory functions and may result in learning difficulties. Special education services may be appropriate for children whose brain tumor treatment seriously interferes with education and learning.
