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In Treatment

Camps and Wish Granting Organizations

April 28, 2015
The following is a list of camps and wish granting resources offered to pediatric cancer survivors and their families.Camps for children and their familiesCamp Mak-a-DreamCamp Mak-a-Dream offers a cost free, medically supervised retreat in Montana to children and families affected by cancer.

Children’s Educational Rights and their Legal Protections

April 15, 2015
There are laws to protect the rights of children who are left with learning disabilities, physical or health limitations that keep them from participating in regular educational programs.

Complementary Therapies and Healthy Eating

April 14, 2015
As a parent there may be times where you want more for your child than what is being offered by your child’s clinical team through standard medical care. When used in addition, or as a compliment to, traditional treatment and surgery, complimentary therapies and nutrition counseling may...

Give Yourself More Control During Your Child’s Hospital Stay

April 14, 2015
There are many steps that you can take to make your child's hospital stay better for all of you. Here is a list of things you can do that will help empower you and your child.Ask the facility for unrestricted visiting hours for parents.Find out what accommodations the hospital provides for...

Questions to Ask Your Child's Doctor

April 13, 2015
Keeping track of all the incoming information after your child has been diagnosed with a brain tumor can be a challenge. It can be difficult to remember everything you’re told. This is especially true when it comes to talking to your doctor. To help out the conversation, we have compiled a...

Air Travel and Lodging Assisitance

April 9, 2015
Air TransportationOccasionally children must travel long distances in order to receive the specialized medical care they need. Many airlines provide free airline fares for a child and an accompanying parent. Social workers may assist you with this information, but it may also be helpful to contact...

Financial Aid Resources for Patients and their Families

April 3, 2015
The following is a list of organizations and government funded programs that offer information and support for families dealing with cancer. They cover a wide range of needs including medical equipment coverage, costs of travel, utility assistance and more. Some of these are specific to certain...

Parents, Marriage, and Family

April 10, 2013
The tasks, obligations, and emotions related to having a child with a serious illness can strain even a strong marriage and family. If parents are divorced or separated, they will need to try to put their personal differences aside to help their child. Single parents may need even more support from...


April 10, 2013
Parents whose child has a tumor are easily overwhelmed by everything that needs to be handled. They may be physically and emotionally drained from extended hospital stays and the intensity of caring for their sick child. Other children in the family may have unavoidably been deprived of emotional...

Advice for Dealing With Your Insurance Company

April 10, 2013
Educate yourself. Know about your child’s illness and why referrals to specialists are needed. You will sound knowledgeable and thus will be more likely to quickly get the assistance you need.Get a copy of your policy and review it carefully. See exactly what services are covered and how the...

Returning to School

April 10, 2013
“Back to normal” means “back to school” for most older children. When your child returns to school, you want him or her to be treated as normally as possible. You will need the cooperation of both the school and the health care professionals working with your child. It is...

Follow-Up Treatment and Rehabilitation

April 10, 2013
Initially, you or your child will be making regularly scheduled visits to the neurosurgeon or other specialists to follow up on his or her progress. Professionals affiliated with support services may be monitoring you at home to provide help, but there are still other experts who may have to be...

Medical Expenses, Insurance, and Financial Assistance

April 10, 2013
Bills add up rapidly. Even if you have good insurance coverage, there will be nonmedical expenses such as phone calls, extra gas, tolls, meals away from home, child care, and lost wages. (Keep receipts—some of these expenses may be tax deductible.) It will be important that you receive all...

When to Call Your Child’s Doctors

April 10, 2013
It will help if you discuss ahead of time with your child’s doctors (and write down in your notebook) what signs and symptoms you might normally expect to see during your child’s recovery period. Collect prescriptions for all medicines you might possibly need. Ask the doctor what...

Preparation and Transition

April 10, 2013
Going home can be exciting and joyous for the whole family. It can also be a hectic, fearful, and anxiety-filled period. Both you and your child may feel apprehensive when leaving the security of familiar doctors and nurses, even though they are only a phone call away. All of these emotions are...

Clinical Trials

April 10, 2013
Clinical Trials/ProtocolsYour child’s doctor or treatment team may recommend that you enroll your child in a clinical trial. This is a research study of new therapies (or experimental drugs and treatments). By studying a larger collected group of children in a protocol with very exact...

Changes in Physical Appearance

April 10, 2013
For children (especially teenagers), self-esteem and self-confidence are often closely related to physical appearance. Changes in appearance may lead to an altered self-image.

The Parent as Advocate

April 10, 2013
An advocate is a person who speaks in support of, or pleads the cause of, someone else. You are the best advocate for your child. Sometimes your child’s voice will be heard only if you speak up.

Your Child's Medical Team

April 10, 2013
After the initial diagnosis of a brain or spinal cord tumor is made, you may need to consult other specialists and doctors, depending on the type of tumor and the treatments recommended. Together with you, these professionals will take a team approach and map out a general plan of care for your...

Supporting Your Child

April 10, 2013
Just like their parents, children often feel emotionally stressed in the face of serious illness. Children’s—especially teens’—anxiety levels may already be high from whatever suffering the tumor has caused, from the loss of independence and physical ability, to pain or the...

Preparing for Surgery

April 10, 2013
Your child’s neurosurgeon will go over the precise details of what will take place during your child’s surgery. It is important, for several reasons, that you clearly understand what is going to take place. Not only are you going to be asked to give informed consent by signing the...

General Hints

April 10, 2013
Depending on what type of brain tumor your child has, you may be experiencing long hospital stays. A hospital environment can seem intimidating at first, but we hope the hints we provide here will help you and your child feel more comfortable. Both of you need to feel as comfortable as possible in...

Getting a Second Opinion

April 10, 2013
Not everyone wants or requires a second opinion, but it can be very reassuring, and no doctor should be insulted by your requesting to consult another doctor about your child’s life and well-being. Opinions may not, of course, be of equal value. Try to obtain them from pediatric specialists...

National Association for Proton Therapy

October 20, 2011
We often hear questions pertaining to proton therapy and therefore we wanted to provide members of the CBTF community with a resource to provide you with additional information on proton therapy. The National Association for Proton Therapy (NAPT) is a non-profit organization supported by...

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