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In Treatment

CBTF Family e-Newsletters

August 5, 2015
Children’s Brain Tumor Foundation provides a semi-monthly e-newsletter that highlights some of our most recent programs and acitivites, addresses key issues and challenges among brain tumor patient and survivors, and keeps you up to date on upcoming events and activities!July 2015Focus on...

Brain Tumor Survivor Late Effects Clinics

April 28, 2015
Following is a comprehensive list of late effects clinics. These clinics follow the Children’s Oncology Group (COG) long-term guidelines for survivors of childhood, adolescent and young adult cancer. They address the medical, educational, and quality of life issues faced by brain tumor...

Camps and Wish Granting Organizations

April 28, 2015
The following is a list of camps and wish granting resources offered to pediatric cancer survivors and their families.Camps for children and their familiesCamp Mak-a-DreamCamp Mak-a-Dream offers a cost free, medically supervised retreat in Montana to children and families affected by cancer.

Children’s Educational Rights and their Legal Protections

April 15, 2015
There are laws to protect the rights of children who are left with learning disabilities, physical or health limitations that keep them from participating in regular educational programs.

Complementary Therapies and Healthy Eating

April 14, 2015
As a parent there may be times where you want more for your child than what is being offered by your child’s clinical team through standard medical care. When used in addition, or as a compliment to, traditional treatment and surgery, complimentary therapies and nutrition counseling may...

Give Yourself More Control During Your Child’s Hospital Stay

April 14, 2015
There are many steps that you can take to make your child's hospital stay better for all of you. Here is a list of things you can do that will help empower you and your child.Ask the facility for unrestricted visiting hours for parents.Find out what accommodations the hospital provides for...

End to Rescission, and More Good News

April 13, 2015
Americans are already starting to see the benefits of health care reform. The new law requires health insurance companies — starting in September — to end their most indefensible practice: rescinding coverage after a policyholder gets sick. In recent days insurers and their trade...

Low Income Utility Assistance

April 13, 2015
The following is a list of resources that can help with utlility assistance for certain low-income families. Campaign for Low Income Energy AssistanceProvides national assistance for home energy needsNational Energy Assistance Director's Association: State Energy Assistance Directors...

Optic Nerve Glioma Defined

April 13, 2015
A glioma is a tumor that grows from glial cells, which are supportive cells in the brain. Optic nerve gliomas grow specifically in the optic nerve which is the part of the brain that connects the eye to the visual center of the brain. Optic nerve glioma can effect one or both optic nerves.Optic...

Brain Stem Gliomas Defined

April 13, 2015
A glioma is a tumor that grows from glial cells, a supportive cell in the brain. Brain stem glioma grows specifically in the brain stem which is the part of the brain that controls many of the body’s basic functions, such as motor skills, sensory activity, coordination and walking, the...

Craniopharyngioma Defined

April 13, 2015
A craniopharyngioma is a slow-growing tumor that can grow for many years before being found. It can be solid and/or cystic (a closed pouch or sac that contains fluid), and it may contain calcified nodules (a growth or lump that has hardened due to deposits of calcium). A cystic tumor may also...

Medulloblastomas Defined

April 13, 2015
Medullablastomas are fast-growing tumors that form in brain cells in the cerebellum. The cerebellum is at the lower back part of the brain between thecereand the brain stem. The cerebellum controls movement, balance, and posture.

Questions to Ask Your Child's Doctor

April 13, 2015
Keeping track of all the incoming information after your child has been diagnosed with a brain tumor can be a challenge. It can be difficult to remember everything you’re told. This is especially true when it comes to talking to your doctor. To help out the conversation, we have compiled a...

Cancer Research Journals

April 10, 2015
These publications are peer reviewed journals addressing various disciplines of clinical and psycho-social care of children and families, including those with brain tumors and cancer. They are for both professionals and patient/caregiver audiences. Please note that most journals do not release free...

Air Travel and Lodging Assisitance

April 9, 2015
Air TransportationOccasionally children must travel long distances in order to receive the specialized medical care they need. Many airlines provide free airline fares for a child and an accompanying parent. Social workers may assist you with this information, but it may also be helpful to contact...

Financial Aid Resources for Patients and their Families

April 3, 2015
The following is a list of organizations and government funded programs that offer information and support for families dealing with cancer. They cover a wide range of needs including medical equipment coverage, costs of travel, utility assistance and more. Some of these are specific to certain...

Parents, Marriage, and Family

April 10, 2013
The tasks, obligations, and emotions related to having a child with a serious illness can strain even a strong marriage and family. If parents are divorced or separated, they will need to try to put their personal differences aside to help their child. Single parents may need even more support from...

Siblings

April 10, 2013
Parents whose child has a tumor are easily overwhelmed by everything that needs to be handled. They may be physically and emotionally drained from extended hospital stays and the intensity of caring for their sick child. Other children in the family may have unavoidably been deprived of emotional...

Advice for Dealing With Your Insurance Company

April 10, 2013
Educate yourself. Know about your child’s illness and why referrals to specialists are needed. You will sound knowledgeable and thus will be more likely to quickly get the assistance you need.Get a copy of your policy and review it carefully. See exactly what services are covered and how the...

Returning to School

April 10, 2013
“Back to normal” means “back to school” for most older children. When your child returns to school, you want him or her to be treated as normally as possible. You will need the cooperation of both the school and the health care professionals working with your child. It is...

Follow-Up Treatment and Rehabilitation

April 10, 2013
Initially, you or your child will be making regularly scheduled visits to the neurosurgeon or other specialists to follow up on his or her progress. Professionals affiliated with support services may be monitoring you at home to provide help, but there are still other experts who may have to be...

Medical Expenses, Insurance, and Financial Assistance

April 10, 2013
Bills add up rapidly. Even if you have good insurance coverage, there will be nonmedical expenses such as phone calls, extra gas, tolls, meals away from home, child care, and lost wages. (Keep receipts—some of these expenses may be tax deductible.) It will be important that you receive all...

When to Call Your Child’s Doctors

April 10, 2013
It will help if you discuss ahead of time with your child’s doctors (and write down in your notebook) what signs and symptoms you might normally expect to see during your child’s recovery period. Collect prescriptions for all medicines you might possibly need. Ask the doctor what...

Preparation and Transition

April 10, 2013
Going home can be exciting and joyous for the whole family. It can also be a hectic, fearful, and anxiety-filled period. Both you and your child may feel apprehensive when leaving the security of familiar doctors and nurses, even though they are only a phone call away. All of these emotions are...

Nutrition

April 10, 2013
Good nutrition is an important part of your child’s treatment. Try to deviate as little as possible from your child’s normal diet. Your child’s body needs to heal and gain strength in order to resume normal activities and undergo any treatments that may be planned.

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