Americans are already starting to see the benefits of health care reform. The new law requires health insurance companies — starting in September — to end their most indefensible practice: rescinding coverage after a policyholder gets sick. In recent days insurers and their trade...
The study focused on 6,542 childhood cancer survivors over 18 who were diagnosed with cancer between 1970 and 1986 and 368 of their siblings as a control group. The study found that 589 survivors, or 9 percent, reported significant functional impairment and clinical distress as well as symptoms...
Initially, you or your child will be making regularly scheduled visits to the neurosurgeon or other specialists to follow up on his or her progress. Professionals affiliated with support services may be monitoring you at home to provide help, but there are still other experts who may have to be...
There are laws to protect the rights of children who are left with learning disabilities, physical or health limitations that keep them from participating in regular educational programs.
Educate yourself. Know about your child’s illness and why referrals to specialists are needed. You will sound knowledgeable and thus will be more likely to quickly get the assistance you need.
Get a copy of your policy and review it carefully. See exactly what services are covered...
If you would like to hear a replay of the teleconference, click on the link at the bottom of this article.
On Friday, December 8, 2000, CBTF collaborated with The Children's Cause and Cancer Care, Inc. on this topic.
This seminar addressed the how tos of: 1) working with your school to get...
If you would like to hear a replay of the teleconference, click on the link at the bottom of this article.
On December 3, 2003, CBTF collaborated with the National Brain Tumor Foundation for a teleconference on this important topic.
There are over 26,000 survivors of pediatric brain tumors in the...
December 3, 2003 Teleconference Childhood Brain Tumors: An Update on Survivorship Question and Answers
Question: Can you comment on the issues related to seizure/anti-epileptic drug effects in regards to these cognitive (learning/processing) and school issues? How can you separate seizure/meds...
Cranial radiation, brain surgery, and some chemotherapeutic agents can compromise cognitive and/or sensory functions and may result in learning difficulties. Special education services may be appropriate for children whose brain tumor treatment seriously interferes with education and learning.
Unfortunately, survivors of childhood brain tumors frequently develop problems in the areas of intellectual ability, academic achievement, memory, and attention. Although many different factors are probably responsible for these changes, including tumor location and surgery, age (younger than 7...
Late effects are new problems that can occur months to years after therapy has ended. Whether or not a child will develop a late effect depends on a number of factors. The most important of these factors include the type and amount of treatment an individual received (for example, radiation...
The tasks, obligations, and emotions related to having a child with a serious illness can strain even a strong marriage and family. If parents are divorced or separated, they will need to try to put their personal differences aside to help their child. Single parents may need even more support from...
Late effects span a spectrum from mild and easily treatable problems (such as an underactive thyroid) to, on rare occasions, serious and life-threatening problems (a second, new cancer). One way to determine your risk for late effects is through the Oncolink Web site. On the site, a...
The following is a list of comprehensive late effects clinics. These clinics follow the Children’s Oncology Group (COG) long-term guidelines for survivors of childhood, adolescent and young adult cancer. They address the medical, educational, and quality of life issues faced by brain tumor...
Children's Brain Tumor Foundation is partnering with Camp Mak-A-Dream for the second annual Heads Up Conference (HUC).
We expect approximately forty participants from across the country. Best of all, the conference if free of charge and there are many travel scholarships avaiable!
Whether you drove before you had a brain tumor or are getting ready to drive for the first time, you want to be sure you are ready. There are adaptations which can be made for vision impairments and there may be circumstances in which you are better off not being on the road. Sometimes, you may...
