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Support

The following are a list of supports by specific states and areas, as well as specific interenet support groups.

-International - Internet-California- Colorado -Connecticut - Florida - Georgia - Illinois - Iowa - Maine Maryland - Massachusetts - Michigan - New Jersey - New York - North & South Carolina - Ohio - Oregon Pennsylvania - Tennessee - Texas - Virginia-

 

International

Parents of Children with Brain and Spinal Cord Tumors

Contact: Adina and Carl Sherer
Location: Israel
City: Tel Aviv and Jerusalem
Phone: 011-972-2-571-2033
E-mail: sherer@actcom.co.il
Meetings held: Monthly

Internet

Day by Day Private Listserv

E-mail: Gigi at gigi@lgcy.com or Liz at stocktrdenbabe@aol.com

Hypothalamic Hamartoma Online Support Group

Contact: Kathleen Davis
E-mail: rwdavis@logan.net
Website http://www.hhugs.com
Meetings held: online, ongoing

Medulloblastoma Online Support Group

E-mail: medulloblastoma-owner@yahoogroups.com

 

N-blastoma (parents of children with neuroblastoma)
 

Website http://listserv.acor.org/archives/n-blastoma.html

 

Optic-Glioma Online Support Group

E-mail: optic-glioma-subscribe@yahoogroups.com

 

PatchWorx

Contact: Teresa Middleton
Location: 333 Ravenswood Avenue
City: Menlo Park, CA
E-mail: patchworx@patchworx.org
 

Ped-onc Listserv

(parents of children on/off treatment for cancer)
Website http://listserv.acor.org/archives/ped-onc.html

Pediatric Brain Tumor Online Support Group

E-mail: pediatricbraintumors-subscribe@yahoogroups.com

California

Sacramento Area Brain Tumor Support Group

Contact: Karen Smith
Location: Lawrence J. Ellison Ambulatory Care Center 4860 Y St., Room 3015
City: Sacramento, CA
Phone: 916-734-5613
E-mail: kksmith@ucdavis.edu
Meetings held: 1st Thursday of every month, 6:30 to 8:30 PM

Santa Barbara Brain Tumor Support Group

Contact: Cathie Nelson
Location: Cancer Center of Santa Barbara 300 West Pueblo Street, Front Lobby
City: Santa Barbara, CA
Phone: 805-682-7300
Meetings held: 2nd Thursday of each month, 5:30-7:00 PM

We Can - Pediatric Brain Tumor Network

Contact: Gigi McMillan
Location: P.O. Box 614
City: Manhattan Beach, CA
Phone: 310-739-3433
E-mail: gigi@wecan.cc
Website www.wecan.cc
Meetings held: please contact for dates and times, but services are provided in Sherman Oaks, Manhattan Beach, Los Angeles, Granada Hills, Bakersfield, Orange County, San Bernardino, and the San Francisco Bay Area.

 

Colorado

Patient & Family Brain Tumor Support Group

Contact: Amy Ebert
Location: Anschutz Oupatient Pavilion, Room 2005 1635 N. Ursula St.
City: Aurora, CO
Phone: 303-315-6635
E-mail: amy.ebert@UCHSC.edu
Meetings held: 1st Wednesday of every month, 5:00-7:00 PM *Primarily for adults

 

Connecticut

Connecticut Children's Medical Center Support Group

Contact: Mary Laliberte
Location: Connecticut Children's Medical Center 282 Washington Street, Clinic 2J
City: Hartford, Connecticut
Phone: 860-545-9620
E-mail: mlalibe@ccmckids.org
Meetings held: 2nd Thursday of each month, 6:00-7:30

*Parent group and a patient-sibling group both run at the above time. There are also ongoing teen groups, contact CCMC for more info.

Florida

Florida Brain Tumor Association

Contact: Sheryl Shetsky
Location: Boca Raton Community Hospital
City: Boca Raton, Florida
Phone: 954-755-4307
E-mail: Bt1Diva@aol.com
Website http://www.fbta.info/
Meetings held: 2nd and 4th Thursday of each month, 7:30-9:00 PM

 

Children On Board

(Pediatric Hematology/Oncology Support Program)
Contact: Cheryl Bansen, MSW, LCSW
Location: Florida Hospital Cancer Institute 2401 N. Orange Avenue
City: Orlando, Florida
Phone: 407-303-2078
Meetings held: 3rd Wednesday of every month, 12:00-1:30 PM *Must call in advance and make a reservation to attend the group

Georgia

Brain Tumor Foundation for Children Support Group

Contact: Mary Campbell
Location: Brain Tumor Foundation for Children 1835 Savoy Drive, Suite 316
City: Atlanta, Georgia
Phone: 770-458-5554
E-mail: btfc@bellsouth.net
Website www.braintumorkids.org
Meetings held: ongoing, contact the foundation
for more info *both parents and children are welcome

Southeastern Brain Tumor Foundation Support Group

Contact: Carla Levingston
Location: THE WELLNESS COMMUNITY Peachtree Dunwoody Pavilion 5775 Peachtree Dunwoody Road, Building C, Room 225
City: Atlanta, Georgia
Phone: 404-843-3700
Meetings held: 2nd Monday of each month, 7:00-8:30 PM

Illinois

Brain Tumor Support Group

Contact: Judy Selle
Location: Decatur Public Library
247 E. North Street
City: Decatur, Illinois
Phone: 217-876-2780
Meetings held: 3rd Saturday of every other month, 10:00 AM-12:00 PM

Midwest Children's Brain Tumor Center Family Support Program

Contact: Denise Flei
Location: Lutheran General Children's Hospital 1675 Dempster Street
City: Park Ridge, IL
Phone: 847-723-5105
E-mail: denise.fleig@advocatehealth.com
Meetings held: 2nd Wednesday of the month, 7:00 PM

 

Iowa

Lighthouse SOS

Support for pediatric brain and spinal cord tumors families of the midwest
 

Contact: Carol Nielson or Mary Wilder
Phone: 515-965-1443 or 507-453-5274
E-mail: cnielson@lighthousesos.org or mwilder@lighthousesos.org
 

Quad Cities Brain Tumor Support Group

Contact: Pat Christy
Location: Genesis Medical Center 1401 W. Central Park
City: Davenport, Iowa
Phone: 563-421-1905
E-mail: christyp@genesishealth.com
Meetings held: 4th Monday of the month, 6:30 to 8:00 PM

Maine

Maine Brain Tumor Support Group

Contact: Nancy Fortier
Location: Maine Medical Center Dana Education Center Classroom #1 22 Bramhall Street
City: Portland, Maine
Phone: 207-871-4527
Meetings held: 2nd Tuesday of every month, 7:00-9:00 PM

Maryland

Brain Tumor Networking Group

Contact: Jeff Klug Facilitator: Robin Katz
Location: Hopewell Cancer Support 901 Dulaney Valley Rd., suite 710
City: Baltimore, Maryland (this address is valid through November 24, 2003) 10628 Falls Road
City: Lutherville, Maryland (this address is valid after November 24, 2003)
Phone: 410-832-2719
Meetings held: 4th Monday of the month, 7:00 to 8:30 PM

Meningioma Listserve

Contact: Tammy Cuda
Phone: 410-614-2886
E-mail: cudata@jhmi.edu
Website http://www.hopkinsmedicine.org/...meningioma.cfm

Massachusetts

Pituitary Tumor Support Group of New England

Contact: Diane Chen
Location: Varies (group via telephone hookup)
City: Boston Area, MA
Phone: 978-352-9791
E-mail: parishrd@yahoo.com
Meetings held: Saturday noon

Brigham & Women's Brain Tumor Support Group

Contact: Nancy Olsen
Location: 75 Francis St.
City: Boston, MA
Phone: 617-732-6826
Meetings held: 1st and 3rd Wednesday of the month, 5:30-7:00 PM

Massachusetts General Hospital Brain Tumor Support Group
 

Contact: Jean Kracher or Michele Lucas
Location: Massachusetts General Hospital Cancer Center conference room on Cox 6 55 Fruit Street
City: Boston, MA
Phone: 617-726-7851 or 617-726-1061
Meetings held: 2nd and 4th Mondays of each month, 12:00 to 1:30 PM

Massachusetts General Hospital Brain Tumor Support Group


Contact: Jean Kracher or Michele Lucas
Location: Massachusetts General Hospital West First floor conference room
40 Second Avenue
City: Waltham, MA
Phone: 617-726-7851 or 617-726-1061
Meetings held: 2nd and 4th Tuesdays of each month, 7:00 to 8:30 PM

Brain Tumor Society Support Group at Lahey Clinic

Contact: Michele Lucas
Location: Lahey Clinic Medical Center Room 5-301, central clinic conference room 41 Mall Road
City: Burlington, MA
Phone: 617-726-1061
Meetings held: 1st and 3rd Mondays of each month, 7:00-9:00 PM

Umass-Worcester Brain Tumor Support Group

Contact: Rebecca Dineen
Location: Surgery Clinic, first floor of the hospital 55 Lake Avenue North
City: Worcester, Massachusetts
Phone: 508-856-3611
Meetings held: 2nd Tuesday of the month, 6:00-8:00 PM

Michigan

Brain Tumor Support Group (Gilda's Club of Greater Detroit)

Contact: Michael Mantas
Location: 3517 Rochester Road
City: Detroit, Michigan
Phone: 248-577-0800
Meetings held: 4th Tuesday of the month, 6:00-8:00 PM

New Jersey

Central New Jersey Brain Tumor and Resource Center

Mailing Address:
P.O Box 221,
Martinsville, NJ 08836
Contact: Patty Anthony
Phone: 732-321-7000 x66785
Email: panthony@solarishs.org
Contact: Stan or Virginia Shrodo
Phone: 908-685-0917
Email: Info@njbt.org
Meeting Location: St. Luke's Church, 300 Clinton Ave. City: North Plainfield, NJ
Meetings held: 1st Thursday of the month 7:00 pm - 8:30 pm

Monmouth and Ocean County Brain Tumor and Resource Center (www.njbt.org)
Mailing Address: P.O. Box 634, Oakhurst, New Jersey 07755
Contact: Nancy Conn-Levin
Phone: 732-922-9686
Email: Mngioma634@aol.com
Contact: Bruce Blount
Phone: 609-758-0806
Email: brub58@comcast.net
Meeting Location: Monmouth County Library, Wall Township Branch 2700 Allaire Road, Wall, NJ
Meetings held: 1st Saturday of the month 3:00 pm - 4:45 pm 1st Thursday of the month 7:00 pm - 8:30 pm (July and August)

New York

Gathering for People Treated for Primary Brain Tumors

(and their families and friends)

Contact: Clarissa Potter
Location: Rockefeller Research Laboratories 430 East 67th Street City: Manhattan, NY
Phone: 212-639-8189 or 212-717-3527
E-mail: potterc@MSKCC.org
Meetings held: 4th Wednesday of every month

Long Island Adult Brain Tumor Support Group of Nassau County

Contact: Donna Lankford
Location: 999 Old Country Road
City: Plainview, New York
Phone: 516-922-4134
E-mail: DPuzzle@aol.com
Meetings held: 1st Thursday evening of the month

Support for Parents of Children with Brain Tumors, Siblings, and Young Adults

Contact: Dr. Marcia Greenleaf
Location: 19 E. 88 Street, suite 1D
City: Manhattan, NY
Phone: 212-534-8877
Meetings held: Call for days and times

Voices Against Brain Cancer and the American Cancer Society Support Group for Caregivers and Family Members of Brain Tumor Patients


Contact: David Pulli, LMSW, 212-237-3843 or visit www.voicesagainstbraincancer.org
Location: American Cancer Society 132 W. 32nd St (Between 6th and 7th Ave.), 4th Floor New York, NY 10001
Meetings held: 4th Wednesday Evening of Every Month, 6:00 – 7:30 PM

North & South Carolina

The Brain Tumor Support Group of the Carolinas & Virginia

Contact: Rayetta Johnson
Location: Wake Forest University Baptist Medical Center/Cancer Services 3175 Maplewood Avenue
City: Winston-Salem, NC
Phone: 336-716-4137
Meetings held: 2nd Tuesday of each month, 6:30-8:00 PM

Ohio

Cleveland Clinic Brain Tumor Support Group

Contact: Kathy Lupica
Location: Taussig Cancer Center
R building, conference room R3-03 9500 Euclid Avenue
City: Cleveland, Ohio
Phone: 216-445-6910
E-mail: lupicak@cc.ccf.org
Meetings held: 4th Wednesday of the month, 5:00 PM

*group for caregivers of adult brain tumor patients; however, caregivers of adolescent patients have participated as well.

Oregon

Brain Tumor Support Group

Contact: Dawn Brucker or Dawn Giza
Location: Legacy Good Samaritan Hospital Comprehensive Cancer Center, 2nd Floor Conference Room 1130 N.W. 22nd Avenue
City: Portland, Oregon
Phone: 503-413-7921 or 503-413-7842
E-mail: dbrucker@LHS.org
Meetings held: 1st and 3rd Wednesday of each month, 4:00-5:30 PM

*Primarily for Adult patients with brain tumors

Pennsylvania

Brain Tumor Support Group of The Lehigh Valley

Contact: Dolores Fioriglio
Location: St. Johns' Lutheran Church
City: Emmaus, PA
Phone: 610-776-2566
E-mail: dfioriglio@aol.com
Meetings held: 2nd Tuesday of each month at 7:30 PM

Pediatric Cancer Foundation of the Lehigh Valley, Inc.

Contact: Nicole Ronco, 610-393-9215
Location: Camelot for Children
City: Allentown, PA
E-mail: info@cancersupportgroup.org
Meetings are held the 4th Tuesday of every month from 6:30pm-8:30pm Childcare will be provided

Pittsburgh Area Brain Tumor Support Group

Contact: Bonnie Shields, MSW
Location: Cancer Caring Center
City: Pittsburgh, PA
Phone: 412-622-1212
E mail: info@cancercaring.org
Meetings held: 1st and 3rd Wednesdays of the month, 7:00-8:30 PM

Tennessee

Memphis Regional Brain Tumor Support Group

Contact: Robbie Lowery
Location: 44 South Cleveland
City: Memphis, TN
Phone: 901-726-6868
E-mail: r.lowery@angelfire.com
Meetings held: 1st Thursday of each quarter, i.e. April, August, December

Texas

Central Texas Brain Tumor Support Group

Contact: Thomas & Joan Lewman
TelePhone: (512) 636-3015 or (512) 636-1578
www.txbraintumor.org
Location: The Brain & Spine Center at Brackenridge Hospital 3rd Floor Boardroom 601 E. 15th St Austin, Texas 78701 (512) 324-7000
Meeting: 6:30pm–8:00pm every second Thursday of the month. No fee.

Grey Matters North Texas Brain Tumor Support Group

Location: HealthSouth Plano Rehabilitation Hospital 2800 West 15th Street
City: Plano, Texas
Phone: 972-867-3431
E-mail: greymattersnorthtexas@yahoo.com
Website www.greymatters.us
Meetings held: 1st Tuesday of every month, 7:00-9:00 PM

*primarily for caregivers of adults but children and their parents are welcome

Houston Area Brain Tumor Network

Contact: Donna Suckow or Susana Lee
Location: M.D. Anderson Cancer Center Place of Wellness
1515 Holcombe Blvd.
City: Houston, Texas
Phone: 713-792-0772 or 713-794-1777
E-mail: dsuckow@mdanderson.org
Meetings held: 1st Tuesday of the month, 6:00-8:00 PM

Virginia

The Brain Tumor Support Group of the Carolinas & Virginia

Contact: Rayetta Johnson
Location: Wake Forest University Baptist Medical Center/Cancer Services 3175 Maplewood Avenue City: Winston-Salem, NC
Phone: 336-716-4137

 

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