Need answers or support? Call 866-228-4673
Originally published on November 11, 2009
Most recently updated on April 14, 2010
Most recently updated on April 14, 2010
American Cancer Society
Phone: 800-ACS-2345www.cancer.org
Association of Cancer Online Resources
www.acor.orgBrain & Neuro Surgery Information Center
www.brain-surgery.comCancer Care, Inc.
Phone: 800-813-HOPEwww.cancercare.org
Cancer Fund of America
Phone: 800-578-5284www.cfoa.org
Cancer Information Service of the National Cancer Institute
Phone: 800-4-CANCERhttp://cis.nci.nih.gov/
Cancer Support Community
www.cancersupportcommunity.org
Support groups and assistance finding resources
The Candlelighters Childhood Cancer Foundation
Phone: 800-336-CCCFwww.candlelighters.org
Chai Lifeline
Phone: (212)-465-1300www.chailifeline.org
The Children’s Cause
Phone: (301)-562-2765www.childrenscause.org
Epilepsy Foundation of America
Phone: 800-332-1000www.epilepsyfoundation.org
Hydrocephalus Association
Phone: 888-598-3789www.hydroassoc.org
firsthand foundation Phone: 816-201-1569
www.cerner.com/firsthand/Friends of Karen
Phone: 914-277-4547www.friendsofkaren.org
Medscape
www.medscape.comMiles for Hope
www.milesforhope.org
Funds research and clinical trials. Offers travel assistance to brain tumor patients to insure they have access to brain tumor centers and doctors in the U.S.
National Association for Parents of Children with Visual Impairments
Phone: 800-562-6265
www.spedex.com/napvi/
National Childhood Cancer Foundation
Phone: 800-458-NCCFwww.nccf.org
National Children’s Cancer Society
Phone: 800-532-6459www.children-cancer.org
National Hydrocephalus Foundation
Phone: (562)-402-3523www.nhfonline.org
National Library of Medicine’s PubMed
(an index to MEDLINE’s medical journal articles)www.ncbi.nlm.nih.gov/PubMed/
National Parent Network on Disabilities
Phone: (703)-684-6763Partnership for Prescription Assistance
www.pparx.org
Access to free or nearly free drugs directly from pharmaceutical company programs based on financial need.
Patient Access Network
www.panfoundation.org
Co-payment assistance for approved cancer medications for patients who qualify based on income.
Patient Advocate Foundation
Phone: 800-532-5274www.patientadvocate.org
Pearce Q Foundation
Phone: 302-824-5944www.pearceqfoundation.org
The Jake Owen Raborn Foundation
Phone: 888-356-5253
www.jakesfoundation.org
Requests for financial assistance must come from the family's social worker.
SuperSibs!
Phone: 866-444-SIBS
www.supersibs.org
Technical Assistance Alliance for Parent Centers (the Alliance)
Phone: 888-248-0822www.taalliance.org


