Brain Tumor Survivor Late Effects Clinics

The following is a list of comprehensive late effects clinics. These clinics follow the Children’s Oncology Group (COG) long-term guidelines for survivors of childhood, adolescent and young adult cancer. They address the medical, educational, and quality of life issues faced by brain tumor survivors.

There are two important reasons that you should participate in follow-up at a late effects clinic:

• these clinics are familiar with potential late effects related to cancer treatment and
• your involvement will allow them to continue to develop knowledge about the effects of treatment.

Not all of the clinics listed below are seeing brain tumor survivors, but the contact person will be able to guide you to the appropriate department within their hospital. If you are unable to attend a late effects clinic, we recommend you print the COG guidelines specific to your diagnosis and treatment and share them with your healthcare provider. It is vital that you know your treatment history and share this with all of your healthcare providers. Please call CBTF at 866-228-HOPE or email swagner@cbtf.org if you need further survivorship information.

Alabama

University of Alabama
Taking on Life After Cancer Clinic
1600 7th Ave. S.
Birmingham, AL 35233
Contact: Jodi Carlee, RN, MSN

Primary physician: Kimberly Whelan, MD
Criteria: Two years off therapy; Five years from diagnosis.
Age Limit: No
Neuro-oncology: Yes
Times: Fridays

Arizona

Cardon Children's Medical Center
Long-Term Follow Up Clinic
1400 South Dobson Road
7th Floor Pediatric Hemotology/Oncology
Mesa, AZ 85202
Contact: Laurie Smith RN, MSN
Contact number: 480-412-7632
Contact e-mail: laurie.smith@bannerhealth.com
Primary Physician: Jared Klein, MD
Criteria: Three years off Therapy
Age Limit: No
Neuro-oncology: Yes

Phoenix Children’s Hospital
Late Effects Clinic
1919 E. Thomas Rd.
Phoenix, AZ 85016
Contact: Michelle Martinez
Contact number: 602-546-0920
Contact e-mail: manvalenzuela@pheonixchildrens.com
Primary physician: Galit Rosen, MD
Criteria: Two years off therapy; Five years from diagnosis.
Age Limit: No
Neuro-oncology: Yes
Times: Second and fourth Friday and third Thursday

California

Cedars-Sinai Medical Center
Room AC1106, Lower Level Cancer Center
8700 Beverly Blvd.
Los Angeles, CA 90048-1865
Contact number: 310-423-4423
Fax number: 310-967-1141
Contact e-mail: barqueraa@cshs.org
Primary Physician: Carole Hurvipz, MD; Fay Majlessipour, MD
Criteria: Two years off therapy; Five years from diagnosis
Age Limit: Patients seen up to 21 years of age
Neuro-oncology: Yes

Children's Hospital Central California
9300 Valley Children's Place FC13
Madera, CA 93638-8762
Contact: Jocelyn Alsdorf
Contact number: 559-353-5561
Criteria: Two years off therapy; Five years from diagnosis
Age Limit: Patients seen up to 21 years of age
Neuro-oncology: Yes

Children’s Hospital, Los Angeles
LIFE Program
Adult Survivorship Programs
Children’s Center for Cancer and Blood Diseases
4650 Sunset Blvd.
Los Angeles, CA 90027
Contact: Kasey Rangan, RN, MSN, PNP
Contact number: 323-361-6053
Contact e-mail: krangan@chla.usc.edu
Primary physician: David Freyer, MD
Criteria: Two years off therapy; Five years from diagnosis.
Age Limit: No
Neuro-oncology: Yes
Times: Wednesdays

Children’s Hospital of Orange County
Long Term Follow-up Clinic for Survivors of Childhood Cancer
455 Main St.
Orange, CA 92868
Contact: Janet Hager, RN, BSN
Contact number: 714-289-4181
Primary physician: Lillibeth Torno, MD
Criteria: Two years off therapy and five years after diagnosis.
Age Limit: No
Neuro-oncology: Yes
Times: Thursdays (p.m.)

City of Hope National Medical Center
Survivorship Clinic
1500 E. Duarte Rd.
Duarte, CA 91010
Contact: Karla Wilson, NP
Contact Number: 626-471-9220
Contact e-mail: kwilson@coh.org
Clinic e-mail: survivorship@coh.org
Primary physician: Saro Armenian, DO
Criteria: Diagnosed prior to turning 22, Five years after diagnosis and two years off treatment.
Age Limit: No
Neuro-oncology: Yes

Lucile Packard Children's Hospital Stanford
Health After Therapy Clinic (HAT Clinic)
725 Welch Rd.
Palo Alto, CA 94304
Contact: Verna Mitchell, PNP
Contact number: 650-498-6206
Contact e-mail: vmitchell@lpch.org
Primary physician: Arun Rangaswani, MD
Criteria: Five years off therapy.
Age limit: No
Times: Second and fourth Fridays

Miller Children's Hospital/Harbor-UCLA
STAR (Survivor's Treatment Assessment and Resource) Program
2653 Elm Ave.
Suite 200
Long Beach, CA 90806
Contact: Susan Shannon, CPNP, MSN
Contact number: 562-728-5000
Contact e-mail: sshannon@memorialcare.org
Primary physician: Jerry Z. Finklestein, MD; Amanda Termuhlen, MD
Criteria: Two years off therapy; Other eligibility criteria
Age Limit: No

UCLA School of Medicine
UCLA-LIVESTRONG Cancer Survivorship Center of Excellence
10833 Le Conte Ave. MDCC A2-410
Los Angeles, CA 90095
Contact: Erin Hahn, MPH
Contact number: 310-825-9781
Contact e-mail: survivorship@ucla.edu
Website: www.vita.mednet.ucla.edu
Primary Physician: Jacqueline Casillas, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

UCSF School of Medicine
Survivors Clinic
400 Parnassus Ave., Suite A101
San Francisco, CA 94143-0134
Contact: Linda Lee or Shannon Raber, NP
Contact number: 415-476-7910
Contace e-mail: lilw@peds.ucsf.edu
Primary Physician: Robert Goldsby, MD
Criteria: Two years of treatment; Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes
Time: The first Thursday off each month.

University of California, Davis
UC Davis Cancer Center
4501 X St.
Sacramento, CA 95817
Contact: Helen Rice
Contact number: 916-734-5959
Criteria: Two years off treatment; Five years from diagnosis
Age Limit: Case dependent
Neuro-oncology: Yes

Colorado

The Children’s Hospital
Helping Oncology Patients Excel (H.O.P.E). Clinic/ Survivorship Clinic
13123 East 16th Ave.
Durora, CO 80045
Contact: Genevieve Sylvain
Contact number: 720-777-5441
Contact e-mail: sylvain.genevieve@tchden.org
Clinic e-mail: hope@tchden.org
Primary Physician: Brian Greffe, M.D.
Criteria: Two years off therapy and five years after diagnosis.
Age Limit: No
Neuro-oncology: Yes
Time: Third Thursday of the month.

Connecticut

Health Education Research and Outcomes for Survivors (HERO’s)
Dept. of Pediatrics of Childhood Cancer Clinic
Yale University School of Medicine
333 Cedar St.
New Haven, CT 06525
Contact: Tonetta Christie, RN
Contact number: 203-785-4640
Contact e-mail: tonetta.christi@yale.edu
Primary physician: Nina Kadan-Lottick, MD, MSPH
Criteria: Diagnosed before age 21
Times: First, second, and third Monday afternoon
 

District of Columbia

Children's National Medical Center - D.C.
Long Term Survivor Clinic
111 Michigan Ave. NW
Washington D.C. 20010
Contact: Holly DeLuca, RN, NP
Contact number: 202-476-3568
Contact e-mail: hdeluca@childrensnational.org
Primary Physician: Sadhna Shankar, MD
Criteria: 4-5 years off therapy
Age Limit: No
Neuro-oncology: Yes

Georgetown University Medical Center
Late Effects Clinic for Cancer Survivors
3800 Reservoir Road NW
Washington D.C., 20007, 1st Floor
Contact: Karen Hennessy, CPNP
Contact number: 202-444-7599
Fax number: 202-444-3713
Primary Physician: Aziza Shad, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

Florida

Nemours Children’s Clinic-Orlando
Follow-Up After Cancer Treatment (FACT)
1717 Orange Ave.
Orlando, FL 32806
Contact number: 407-650-7230
Primary physician: Judy Wall, MD
Criteria: Two years off treatment.
Times: Tuesday (a.m.) and Thursday (p.m.)
Website: www.nemours.org

Arnold Palmer Hospital for Children/M.D. Anderson Cancer Center— Orlando
FACT (Follow-up After Cancer Treatment) Long-term Follow-up Clinic
Center for Children’s Cancer and Blood Disorders
92 W. Miller St., MP # 318
Orlando, Florida 32806
Contact: Liana Bristol-Cruz, M.S., ARNP, FNP-BC
Contact number: 321-841-8588 Fax: 321-841-8560
Contact e-mail:liana.bristol-cruz@orlandohealth.com
Primary Physicians: Vincent Giusti, M.D.; Don Eslin, M.D.; Robert Sutphin, M.D.; & Alejandro Levy, M.D.
Criteria: Children and adult survivors of childhood cancer who are at least 2 years off-therapy
Time: Clinic is held every Tuesday and Thursday

Georgia

Aflac Cancer and Blood Disorders Services
Aflac Cancer Center and Cancer Survivor Program
1405 Clifton Rd.
Atlanta, GA 30322
Contact: Melissa Hamilton
Contact number: 404-785-1717
Primary physicians: Lillian Meacham, M.D.
Criteria: Two years off treatment. Referred to Young Adult Survivor Clinic after age 21.
Times: Tuesday and Wednesdays

Emory Healthcare
Young Adult Survivor Clinic
1365 Clifton Rd.
Atlanta, GA 30322
Contact: Mary Batcha
Contact number: 404-288-8838
Contact e-mail: mary.m.batcha@emoryhealthcare.org
Primary physician: Natia Esiashvili, M.D.
Criteria: Two years off treatment. Patients 21 and older.
Time: Third Friday of the month

Illinois

Children’s Memorial Hospital
Pediatric Survivors Taking Action & Responsibility (STAR) Program
2300 Children’s Plaza
Chicago, IL 60614
Contact: Barbara Lockhart, RN, MSN, CPNP
Contact number: 773-880-4151
Contact e-mail: blockhart@childrensmemorial.org
Primary physician: Kimberly Dilley, MD
Criteria: Two years off therapy and five years after diagnosis. Patients transition to the Adult STAR program at age 21.
Times: Wednesdays

Hope Children’s Hospital
Pediatric Oncology Survivorship in Transition (POST) Program
4440 West 59th St.
Oak Lawn, IL 60453
Contact: Linda Rivard, RN
Contact number: 708-684-4042
Primary physician: Ammar Hayani, MD, Sharad Salvi, MD, Jason Canner, D.O., Rebecca McFall, MD
Criteria: One year of therapy
Age Limit: No
Times: Tuesdays and Thursdays

Northwestern Medical Faculty Foundation
Survivors Taking Action & Responsibility (STAR) Program
675 North St. Clair
Chicago, IL 60611
Contact: Karen Kinahan, MS, RN, BC
Contact number: 312-695-4979
Contact e-mail: kkinahan@nmff.org
Primary physician: Aarati Didwania, M.D.
Criteria: Adult childhood cancer survivors
Time: Two Tuesdays a month

Southern Illinois University School of Medicine
Cancer Wellness Program
PO Box 19678
Springfield, IL 62794-9678
Contact: Ellen Brotzman-DeSart
Contact number: 217-545-0798
Contact e-mail: ellenbrotzman-desart@siumed.edu
Criteria: Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes

Indiana

Riley Children’s Hospital
702 Barnhill Dr.
Indianapolis, IN 46202
Contact: Ann Haddix, CPNP
Contact number: 317-278-0199
Primary physician: Terry Vik, MD
Criteria: Two to three years off therapy and yearly follow-up.
Age Limit: No
Neuro-oncology: Yes
Times: First and fourth Wednesday of the month

Maryland

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Long-Term Follow-Up Clinic
600 N. Wolfe St.
Baltimore, MD 21287
Contact: Kathy Ruble
Contact number: 410-614-5062
Primary physician: Kenneth Cohen, MD (brain tumor patients)
Criteria: Three to five years after diagnosis. There is no age limit.
Times: Tuesdays

Sinai Hospital of Baltimore
Bridge Clinic
Ground Floor Blaustien Building
2401 W. Belvedere Ave.
Baltimore, MD 21215
Contact: Revonda Mosher, PNP
Contact number: 410-601-5864
Contact e-mail: rmosher@lifebridgehealth.org
Primary Physicians: Jason Fixler, M.D. and Joseph Wiley, M.D.
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

University of Maryland at Baltimore

Long-Term Follow-Up Clinic
22 S. Green Street

Baltimore, MD 21201
Contact: Diane Keegan Wells RN, CPNP
Contact number: 410-328-2808
Contact e-mail: dwells@peds.umaryland.edu
Primary Physician: Teresa York, MD
Criteria: Two years off therapy
Age Limite: Patients seen until age 30
Neuro-oncology: Yes
Website: http://www.umgcc.org/pedonc_program/diagnostic_treatment.htm

Massachusetts

Dana-Farber Cancer Institute
The Stop and Shop Family Pediatric Brain Tumor Program
44 Binney St.
Boston, MA 02115
Contact: Patricia Flaveney
Contact number: 617-632-2680
Contact e-mail:patricia_flaveney@dfci.harvard.edu
Primary physician: Peter Mamley, MD
Criteria: Two or more years off treatment and diagnosed before age 21. There is no age limit.
Neuro-oncology: Yes
Times: Thursdays
Web site: http://www.dana-farber.org/Pediatric-Care/Treatment-and-Support/Pediatri...

Michigan

DeVos Children’s Hospital
The After-Care and Transition (ACT) Program
330 Barclay NE, Suite 203
Grand Rapids, MI 49503
Contact: Colleen Gardner, RN
Contact number: 616-391-2653
Primary physician: David Freyer, DO and Albert Cornelius, MD (brain tumor patients)
Criteria: Two years off therapy and five years after diagnosis. There is no age limit.
Times: First and fourth (brain tumor patients) Wednesday of the month.

University of Michigan
Long Term Follow-Up Clinic
1500 East Medical Dr.
Ann Arbor, MI 48109
Contact: Marcia Leonard, RN, PNP
Contact number: 734-936-9814
Primary physicians: Patricia Robertson, MD; James Connelly, MD
Criteria: Five years off treatment. There is no age limit.
Times: Fridays

Minnesota

Children's Hospitals and Clinics of Minnesota
Long Term Follow-Up Clinic
Specialty Center
2530 Chicago Ave. Suite 175
Minneapolis, MN 55404
Contact: Kathleen Herrington/Hemotolgy-Oncology Clinic
Contact number: 612-813-5940
Primary Physician: Ann Bendel, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes
Website: http://www.childrensmn.org/

University of Minnesota Amplatz Children’s Hospital
Long-Term Follow-Up Clinic
424 Harvard St SE, Suite M100
Minneapolis, MN 55455
Contact: Jill Lee, RN, CNP-Peds, CPON
Contact Number: 612-624-9139
Primary Physician: Joseph Neglia, MD
Criteria: 5 years after diagnosis
Age Limit: No
Neuro-oncology: Yes
Time: Tuesday afternoons and Friday Mornings
Website: http://www.umphysicians.org/Clinics/long-term-follow-up-clinic/index.htm

Missouri

Cardinal Glennon Children's Hospital
Long-Term Follow-Up Clinic
The Bob Costas Center
1465 South Grand Blvd.
St. Louis, MO 63104
Contact: Patricia Codden, RN, MSN
Contact number: 314-268-4000
Contact e-mail: patricia_codden@ssmhc.com
Primary Physician: John Peutz, MD
Criteria: Five years off therapy
Age Limit: No
Neuro-oncology: Yes

St. Louis Children’s Hospital
Late Effects Clinic
One Children’s Place
St. Louis, MO 63110
Contact: Jennifer Henry, APRN, PNP
Contact number: 314-454-6048
Contact e-mail: henry_je@kids.wustl.edu
Primary physician: Robert Hayashi, MD
Criteria: Two years off therapy.
Age Limit: No
Neuro-oncology: Yes
Times: Mondays

New Hampshire

Dartmouth-Hitchcock Medical Center
Norris Cotton Cancer Center
One Medical Center Drive
Lebanon, NH 03756
Contact: David Nalepinski
Contact number: 603-653-0593
Contact e-mail: David.C.Nalepinski@hitchcock.org
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes
Websites: cancer.dartmouth.edu/pf/cancer_care/pediatric.html
 

New Jersey

Hackensack University Medical Center
Cure and Beyond
385 Prospect Ave.
Hackensack, NJ 07601
Contact: Jill Brooks
Contact number: 201-487-8987
Contact e-mail: jbrooks@humed.com
Primary Physician: Michael B. Harris, MD
Criteria: Two years after completion of treatment.
Age Limit: No
Neuro-oncology: Yes

Saint Peter's University Hospital
LIFE Program
254 Easton Ave.
New Brunswick, NJ 08901
Contact number: 732-745-6674
Criteria: Two years off thearpy; Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes

The Cancer Institute of New Jersey-Robert Wood Johnson University Hospital
The LITE Program
195 Little Albany St.
New Brunswick, NJ 08901
Contact: Dawn Carey, RN, MSN,APN
Contact number: 732-235-8838
Primary physician: Margaret Masterson, MD
Criteria: Two years off treatment.
Age Limit: No
Neuro-oncology: Yes
Times: First and third Friday of the month.

New Mexico

University of New Mexico School of Medicine
YES Clinic
UNM Hospital, Ambulatory Care Center, 3rd Floor
2211 Lomas Blvd. NE
Albuquerque, NM 87131
Contact: Moyna Robeson
Contact number: 505-272-4461
Contact e-mail:mrobeson@salud.unm.edu
Primary Physician: Linda Butros, MD
Criteria: Two years off therapy
Neuro-oncology:Yes
Times: Friday clinic 1-4 pm

New York

Albany Medical Center
Late Effects Clinic
47 New Scotland Ave
Albany, NY 12208-3419
Contact: Kelly Clickner
Contact number: 518-262-5804
Contact e-mail: clicnk@mail.amc.edu
Primary Physician: Joanne Porter, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

Memorial Sloan-Kettering Cancer Center
Adult Survivor Clinic
300 East 66th St 9th Floor
New York, NY 10065
Contact: Katrina Conanan
Contact number: 646-888-4730
Primary physician: Kevin Oeffinger, MD
Criteria: Adult survivors of childhood cancer.
Times: Monday afternoons, Wednesday morning and Thursday 

Memorial Sloan-Kettering Cancer Center
Pediatric Survivor Clinic
1275 York Ave.
New York, NY 10021
Contact: Debbie Diotallevi, RN, NP; Elaine Pottenger, RN, NP
Contact number: 212-639-8138
Fax number: 212-717-3239
Primary physician: Charles Sklar, MD
Criteria: Brain tumor patients are seen one year after completion of treatment. Transition to adult survivor program at age 25.
Times: Monday, Thursday and Friday

Roswell Park Cancer Institute
Long-term Follow-up Clinic
Elm & Carlton St.
Buffalo, NY 14263
Contact: Theresa Carbone, MS, RD, CPNP-FNP
Contact number: 716-845-4447
Contact e-mail: theresa.carbone@roswellpark.org
Primary physician: Denise Rokitka, MD
Criteria: Two years off therapy.
Age Limit: No
Times: Tuesdays

Women and Children's Hospital at Buffalo
219 Bryant St.
Buffalo, NY 14222
Contact: Julie Higgins
Contact number: 716-878-7797
Primary physician: Lorna Fitzpatrick, MD

Strong Children’s Medical Center
University of Rochester Medical Center
601 Elmwood Ave.
Rochester, NY 14642
Contact number: 585-275-3935
Primary physician: Dr. Sahler
Criteria: At least three years from diagnosis and two years off therapy.
Age Limit: No
Neuro-oncology: yes
Time: Wednesdays

SUNY Upstate Medical University
Kids Now Off of Therapy
Pediatric Hematology/Oncology
750 E. Adams St.
Syracuse, NY 13210
Contact: Susan Shaw, RN, MS, PNP
Contact number: 315-464-7229
Primary physician: Irene Cherrick, MD, Ronald Dubowy, MD (brain tumor patients)
Criteria: Two years off therapy and five years since diagnosis.
Age Limit: No
Neuro-oncology: Yes
Time: Tuesdays and Fridays. Thursdays (endrocrine)

Winthrop University Hospital-The Cancer Center for Kids
Generation of Survivors: The Pat Lyons Long Term Follow-up Program
200 Old Country Rd. Suite 440
Mineola, NY 11501
Contact: Cathy Shimmel, RN, MA, CPON
Contact number: 516-663-9400
Contact e-mail: cshimmel@winthrop.org
Primary physician: Mark Weinblatt, MD
Criteria: Two years post treatment.
Age Limit: No
Neuro-oncology: Yes
Time: Thursday afternoon bi-monthly

North Carolina

Carolinas Medical Center
CARE (Caring About Remission Everyday) Clinic
Levine Children's Hospital
1000 Blythe Blvd
Charlotte, NC 28203
Contact: Kathy Martin, CPNP
Contact number: 704-381-9900
Primary Physicians: Chad Jacobsen, MD
Criteria: Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes
Website: http://www.levinechildrenshospital.org/body.cfm?id=41&oTopID=41

Duke University Medical Center
Young Cancer Survivors Program
Erwin Rd.
Durham, NC 27710
Contact number: 919-684-3401
Primary physician: Philip Rosoff, MD (under age 18)Carlos DeCastro, MD (adults)
Criteria: Five years off therapy.
Age Limit: No
Times: Patients under age 18 are seen every Thursday. Patients over age 18 are seen the third Thursday of the month (p.m.)

University of North Carolina Chapel Hill
Long-term follow-up clinic
Division of Hem-Onc CB#7220
Chapel Hill, NC 27599
Contact: Shelly Ingram
Contact number: 919-966-1178
Age Limit: No
Neuro-oncology: Yes

Ohio

Akron Children’s Hospital
Staying Together After Recovery and Tapping Unlimited Potential (START UP)
One Perkins Square
Akron, OH 44308
Contact: Pam Jones, NP
Contact number: 330-543-8580
Primary physician: Stephanie Sevelli, MD
Criteria: Off treatment for two years.
Age Limit: No
Neuro-oncology: Yes
Time: First Wednesday of the month.

Children’s Hospital Medical Center
ATP Five-Plus Clinic
333 Burnette Ave.
Cincinnati, OH 45229
Contact: Judy Correll, MSN, CNP
Contact number: 513-636-3512
Primary physician: Karen Burns, MD
Criteria: Five years after diagnosis; Two years off treatment.
Age Limit: No

Children's Medical Center - Dayton
Neuro-oncology Clinic
At The Children's Medical Center of Dayton on Valley Street
1 Children's Plaza
Dayton, OH 43205-2696
Contact: Heather Tallet
Contact number: 937-641-4611
Contact e-mail: talleth@childrensdayton.org
Primary Physician: Emmett Broxson, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes
Times: meets the fourth Friday every month
Website:http://www.childrensdayton.org/cms/dayton_childrens_services/6eefa4d4dc08b10b/index.html 

Cleveland Clinic Children's Hospital
High Five Clinic
Cleveland Clinic
9500 Euclid Ave.
Cleveland, OH 44195
Contact: Holly Kubaney, NP
Contact number: 216-444-0015
Contact e-mail: kubaneh@ccf.org
Primary Physician: Gregory Plautz, MD
Criteria: Two years off thearpy
Age Limit: No
Neuro-oncology: Yes
Website: http://my.clevelandclinic.org/childrens_hospital/departments/cancer_bloo...

Cleveland Rainbow Babies & Children’s Hospital
Centers for Survivors of Childhood Cancer
11100 Euclid Ave.
Cleveland, OH 44106
Contact: Lisa Vitkus, MPH
Contact number: 216-844-3090
Primary physician: Chad Jacobsen, MD
Criteria: Diagnosed prior to age 21 and off therapy three years
Neuro-oncology: Yes
Times: Twice a month. Brain tumor patients can be seen at a comprehensive quarterly clinic

Nationwide Columbus Children’s Hospital
Neuro-Oncology Long-Term Follow-Up
700 Children's
Columbus, OH 43025
Contact: Suzanne Scott, RN, MS, CPNP
Contact number: 614-722-6342
Contact e-mail: suzanne.scott@nationwidechildrens.org
Primary physician: Randall Olshefski, MD
Criteria: Three to four years off treatment.
Time: Second Monday of the month (p.m.)

Oregon

Doernbecher Childrens Hospital - OHSU
Survivors Thrive Clinic
10th Floor
3181 SW Sam Jackson Park Road, DC10C
Portland, OR 97239
Contact: Kelly Anderson, NP
Contact number: 503-418-5150
Primary Physician: Lawrence Wolff, MD
Criteria: Two years off therapy
Age Limit: Up to 29 years old
Neuro-oncology: Yes

Emanuel Hospital-Health Center
Emanuel Children's Cancer and Blood Disorders Program Victory Clinic
501 N Graham
Suite 355
Portland, OR 97227
Contact: Patricia Vrooman, PNP
Contact number: 503-413-2560
Contact e-mail: childcanc@lhs.org (attn: Patricia Vrooman)
Primary Physician: Janice F. Olson, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

Pennsylvania

Children’s Hospital of Philadelphia
Long term Follow-Up Clinic
34th and Civic Center Blvd.
Philadelphia, PA 19401
Contact: Wendy Hobbie, MSN, CRNP and Claire Carlson (brain tumor patients)
Contact numbers: 215-590-4562 and 215-590-0432
Contact e-mail: hobbie@email.chop.edu
Primary physician: Jill Ginsberg, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes
Times: Once a month multidisciplinary clinic (brain tumor patients)

University of Pennsylvania: Abramsom Cancer Center
Lance Armstrong Living Well After Cancer Program
3400 Spruce St.
Penn Tower Hotel #1428
Contact: Linda Jacobs, Director, PhD, RN
Contact number: 215-615-3371
Primary physician: Anna Meadows, MD
Criteria: Two years after treatment and no longer seen at Children’s Hospital. They see patients over 21.
Times: Thursdays

Rhode Island

Rhode Island Hospital
Late Effects Clinic
593 Eddy Street
MPS-1
Providence, RI 02903
Contact: June Baerregaard
Contact number: 401-444-5171
Contact e-mail: jbaerregaad@lifespan.org
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

South Carolina

Children's Hospital of the Greenville Hospital System
Survivorship Clinic
900 W. Faris Road
Greenville, SC 29605
Contact: Denise Reisner
Contact number: 864-455-8898
Contact e-mail: dmckenna@ghs.org
Primary Physician: Allan Anderson, MD; Nicole Bryant, MD
Criteria: Two years off therapy
Age Limit: No
Neuro-oncology: Yes

Medical University of SC Children’s Hospital
Follow-Up After Cancer Treatment (FACT)
135 Rutledge Ave.
Charleston, SC 29425
Contact: Diane Dufour, RN, MSN,NP and Sarah Kessler, RN, MSN
Contact number: 843-792-2957
Primary physician: Jacqueline Kraveka, MD
Criteria: Five years off treatment. They see people up to age 30.
Time: First Friday of the month

South Carolina Cancer Center
7 Richland Medical Park
Suite 203
Columbia, SC 29203-6897
Contact number: 803-434-3533
Criteria: Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes

South Dakota

Sioux Valley Children's Specialty Clinics
CASTLE Program: Children and Adolescent Cancer Survivors Taking on Life Everyday
1600 West 22nd St.
Sioux Falls, SD 57117
Contact: Sarah Antonson, RN
Contact number: 605-312-1000
Contact e-mail: sarah.antonson@sanfordhealth.org
Primary Physician: KayeLyn Wagner, MD
Criteria: Two years off treatment, or Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes

Tennessee

St. Jude’s Children Research Hospital
After Completion of Therapy (ACT) Clinic
501 St. Jude Place
Memphis, TN 38105
Contact: Patty Dacus, RN
Contact number: 901-595-3658
Primary physician: Dr. Brannon Morris (brain tumor patients)
Criteria: Five years after diagnosis and two years off therapy. Patient can be seen up to 10 years after diagnosis.
Times: Wednesdays (brain tumor patients)

Texas

Children’s Medical Center of Dallas
After the Cancer Experience (ACE) Clinic
1935 Motor St.
Dallas, TX 75235-7794
Contact: Judy Watkins
Contact number: 214-456-2948
Clinic e-mail: aceprogram@childrens.com
Primary physician: Daniel Bowers, MD
Criteria: Two years off therapy.
Age Limit: No
Neuro-oncology: Yes
Times: Wednesday and Thursday (brain tumor patients)

Cook Children’s Medical Center
Life After Cancer Program
901 Seventh Ave. Suite 220
Forth Worth, TX 76104
Contact: Lisa Bashore, MS, CPNP
Contact number: 682-885-2125
Contact e-mail: lisa.bashore@cookchildrens.org
Primary physician: W. Paul Bowman, MD
Criteria: Five years since diagnosis and two years off therapy.
Age Limit: They will see patients up to age 30.
Neuro-oncology: Yes
Time: Monday and Thursday (p.m.)

Dell Children's Medical Center of Central Texas
LIVESTRONG Survivorship Center
1301 Barbara Jordan Blvd, Ste. 402
Austin, TX. 78723
Contact: Sharon Odozynski, RN, FNP, NP-C
Contact number: 512-628-1910
Contact e-mail: sodozynski@sfcaustin.com
Primary Physician: Virginia Harrod, M.D.
Criteria: Two years off therapy
Age Limit: 10 years from diagnosis or graduation from school (whichever occurs last)
Neuro-oncology: Yes
Website: http://www.dellchildrens.net/services_and_programs/childhood_cancer__blo...

MD Anderson Cancer Center
Long-Term Survivor Clinic
1515 Holcombe, Box 87
Houston, TX 77030
Contact: Nita Burrer (credentials)
Contact number: 713-745-2570
Primary physician: Alan Fields, MD
Criteria: Diagnosed with a pediatric cancer. Must be at the point where there is no reasonable expectation for recurrence.
Age Limit: No
Neuro-oncology: Yes
Times: Monday and Thursday

Texas Children’s Hospital
Late Effects Clinic
6621 Fannin St.
Houston, TX 77030
Contact: Gaye Hamor, MSHA
Contact number: 832-822-4727
Contact e-mail: ghamor@txccc.org
Primary physician: Zoann Vreyer, MD
Criteria: Five years since diagnosis and two and a half years off treatment.
Age Limit: No
Neuro-oncology: Yes
Times: Wednesday and Friday

University of Texas Health Science Center at San Antonio
Childhood Cancer Survivors Clinic
Christus Santa Rosa Children's Hospital
333 N Santa Rosa St.
San Antonio, TX 78207
Contact: Daryl Moczygemba, RN, PNP
Contact number: 210-704-4010
Contact e-mail: moczygemba@uthscsa.edu
Primary Physician: Sharqat Shah, MD
Criteria: Two years off therapy; Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes
Times: clinic is on Tuesdays

Vermont

University of Vermont College of Medicine
Late Effects Clinic (LTFU Clinic)
Given Medical Building
Room E203
Burlington, VT 05405
Contact: Amanda Sargent
Contact number: 802-847-2850
Criteria: Five years from diagnosis
Age Limit: No
Neuro-oncology: Yes

Washington

Sacred Heart Children's Hospital
Long Term Follow-up Clinic
101 W. 8th Ave.
P.O. Box 2555
Spokane, WA 99220-2555
Contact: Vicki Wendt, NP
Contact number: 509-474-2777
Contact e-mail: vicki.wendt@providence.org
Primary Physician: Judy Felgenhauer, M.D.
Criteria: Two years off therapy
Age Limit: No

Seattle Children's Hospital
Cancer Survivor Program
4800 Sand Point Way NE B-6553
Seattle, WA 98105
Contact: Karen Wilkinson, MN, ARNP
Contact number: 206-987-4752
Contact e-mail: karen.wilkinson@seattlechildrens.org
Primary physician: Eric Chow, MD
Criteria: One year or more off therapy
Age Limit: Survivors who are age 21 or younger receive a comprehensive
evaluation and ongoing cancer-related clinical care at Seattle Children’s
through their 22nd birthday.
Times: daily
Website: http://cancer.seattlechildrens.org/our_services/longterm_followup_access.asp

West Virginia

West Virginia University HSC - Charleston
FACCT Clinic
830 Pennsylvania Ave.
Charleston, WV 25302
Contact: Pam Smith, MSN, RN, FNP-C, CPON
Contact number: 304-388-2986; 304-388-1552 (Main appointment number)
Contact e-mail: pcsmith@hsc.wvu.edu
Primary physician: Allen Chauvenet, MD, PhD
Criteria: Two years off thearpy
Age Limit: No
Neuro-oncology: Yes

Wisconsin

Children’s Hospital of Wisconsin
"Next Steps" Clinic
9000 West Wisconsin Ave.
Milwaukee, WI 53226
Contact: Katy Murphy, RN, BSN
Contact number: 414-266-2774
Primary physician: Anne Warwick, MD. MPH
Criteria: Two to three years off therapy depending on disease.
Age Limit: No
Neuro-oncology: Yes
Times: Second and fourth Wednesday

University of Wisconsin Children’s Hospital
Caring for Life Survivor Clinic
600 Highland Ave.
Madison, WI 53792
Contact: Peggy Possin, RN
Contact number: 608-263-6420
Primary physician: Diane Puccetti, MD
Criteria: Five years after diagnosis and two year off therapy
Age Limit: No
Neuro-oncology: Yes
Time: Two Wednesdays a month