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Most recently updated on September 18, 2013
The following are a list of resources that are available to address the needs of brain tumor patients and families. They cover topics such as awareness, advocacy, education and support. Some of them are region specific.
The American Brain Tumor Association (ABTA) provides critical funding to researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, with the ultimate goal of finding a cure. ABTA is also the recognized resource for comprehensive information and compassionate support for the brain tumor patients, families and caregivers who are living with this disease.
Phone: 800-886-2282; (847)-827-9910
BRAIN TUMOR FOUNDATION OF CANADA
Brain Tumour Foundation of Canada is a national, not-for-profit organization dedicated to reaching every Canadian affected by a brain tumour through support, education, information, and research.
Phone: 800-265-5106; (519)-642-7755
BRAIN TUMOR FOUNDATION FOR CHILDREN, INC
Established in 1983 as a 501(c)(3), non-profit organization, the Brain Tumor Foundation for Children, Inc. is dedicated to helping children with brain and spinal cord tumors and their families. The Foundation’s mission is: To provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.
Cancer Knowledge Network is Canada’s most widely read cancer education portal, providing valuable, practical resources for people living with cancer, the doctors who treat them, and the loved ones who care for them. CKN offers a wealth of freely accessible information, research findings, practical information, first-person accounts, and other useful materials – all carefully selected by experts.
The Childhood Brain Tumor Foundation (CBTF) was founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected.
Phone: 877-217-4166; (301)-515-2900
CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES
The Central Brain Tumor Registry of the United States, CBTRUS, is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all brain tumors.
Phone: (773)-579-0021; (630)-655-4786
EBTF's mission is " To be supportive of epidermoid patients by providing connections through shared experiences." They offer peer support to the epidermoid brain tumor patient with
To provide hope, support and education to brain tumor survivors, their families and friends, To conquer brain tumors by funding research into their causes and cures, To enrich the quality of life of those touched by brain tumors
National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.
Phone: 800-934-2873; (510)-839-9777
The PLGA foundation is here to help find the facts, resources and support you need to help your child win the battle against their brain tumor.
SBTF's mission is to improve the quality of life for brain tumor patients and their families. By offering information, education and support services, SBTF aspires to instill hope, knowledge and comfort to all involved. The Southeastern Brain Tumor Foundation also raises funds for research and medical personnel so that a cure can be found.
The Healing Exchange (T.H.E.) Brain Trust provides support services for people affected by brain tumors and related conditions, including patients and families, professionals, and researchers.
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