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2013

SOMETIMES A CAREGIVER, BUT ALWAYS A MOM

By Joan Shannon, guest blogger
Monday, November 25, 2013

To set the record straight, my favorite color is not pink. Its yellow (although purple is a real close second). And not the bright sunny yellow that I used to want to paint on my bedroom walls when I was a child. I settled for painting ceramic cutouts of my initials in the brightest, sunniest yellow I could find and hung them on my bedroom wall when my parents were less than sunny about the idea...

DEFINING SUPERMAN

By Kayla Giacin
Tuesday, October 1, 2013

I'd like you to meet some of my friends. James is a college graduate, aspiring writer and mentor for Imerman Angels, Steven is a phenomenal photographer who is graduating with his bachelor’s degree this fall. Tom is a dedicated volunteer, CBTF brand ambassador and great friend. Rosalie is a passionate and creative artist and college student.

WHAT NOT TO SAY TO A BRAIN TUMOR SURVIVOR

By Kayla Giacin
Monday, September 23, 2013

 “I like the design on you head, did your barber do that?”“Oh, is that why you’re so weird?”“Why do you look like that?”These are all things brain tumor survivors have actually heard from people they know and strangers alike!It seems hard to believe, but when  I asked some of my survivor friends about what kind of things have been said to them...

DEALING WITH THE HIGHS AND LOWS OF HAVING A SERIOUS ILLNESS

By Kayla Giacin
Wednesday, September 11, 2013

Whether you’re a current patient, long term survivor, or close family member or friend dealing with a serious illness such as a brain tumor, you have no doubt experienced very strong emotional highs and lows regardless of age, support system, or current health status of dealing with this on a day to day basis.

MY THOUGHTS ON HOW TO PREPARE YOUR CHILD (AND YOURSELF) FOR AN MRI

By Sylvia Phillps-guest blogger
Wednesday, August 28, 2013

A reader recently asked my advice on how to prepare for her daughter’s upcoming MRI.First I want to say that I am not an expert on this subject.  I can only relate to you my experiences with Bethany going through her many MRI’s!

CONFESSIONS OF A FORMER TEEN: MY EXPERIENCE AT TEEN HUC

By Kayla Giacin
Tuesday, August 13, 2013

As Teen HUC wrapped up just over a week ago, I realized that I have the unique opportunity to view CBTF’s camps from several different points of view: as CBTF staff, as a mentor and also as a survivor.I’ve been reflecting a lot about my time at Young Adult and Teen HUC and what makes both camps, but especially Teen HUC a very unique experience.

LONELINESS: THE SIDE EFFECT THEY DON'T TELL YOU ABOUT

By Kayla Giacin
Thursday, July 18, 2013

When diagnosed with a brain tumor, parents and children are inundated with information about long term effects, medications, ways to cope with side effects and more.  One long term effect that is often overlooked can be referred to loneliness. It’s not listed on the medication leaflet given by your pharmacist or in medical research studies.I just finished reading a blog called, “...

How Do You Define Your Gray?

By Kayla Giacin
Tuesday, April 30, 2013

Passing of past president Joel Shiff

By Joe Fay
Wednesday, April 10, 2013

We mourn the passing of Joel Shiff, a long-standing board member and past president of Children's Brain Tumor Foundation (CBTF). He is survived by his beloved wife, Jane (also a former CBTF board member) ; children Adam (Deena), Jonathan (Laurie), and Gabriel (Ranit), and seven grandchildren. His wise counsel will be missed.

New Discovery Can Help Target Pediatric Brain Tumor Therapies

By Kayla Giacin
Tuesday, April 2, 2013

There is new and promising news in research of pediatric brain tumors.  Currently, brain tumors are treated with medications, surgery, radiation, chemotherapy or a combination of any of these therapies.While these can be effective at decreasing or eliminating tumors, as many of you know these treatments come at a cost.  Physical, cognitive, and emotional changes are common among brain...

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