MANHATTAN - On a rather casual mid-September evening with temperatures topping out at an unseasonable 80 degrees, the Children’s Brain Tumor Foundation (CBTF) office routinely prepares for a larger than life guest speaker – television personality and former advertising executive Donny Deutsch; clad in casual clothing, the structure of the night’s discussion is certainly a...
This past Sunday, on October 14th, the Children’s Brain Tumor Foundation held our first ever “Campference” – connecting the medical professional and patient and family worlds that at times can feel very disconnected. This day offered medical updates, support groups, activities, medical panels, relaxation and so much more.
Children's Brain Tumor Foundation began its 25th year of service to children, families and survivors nationwide with a small celebration at its October board meeting.The theme of this year's anniversary, A Bridge to Hope, conveys our belief that the organization helps build with the children, families and survivors we serve a bridge that leads to a more hopeful place with services...
Yesterday on our online chat Maura had asked an interesting question that had really made me think back to my child days. Her question was, do any of you feel like "no one really understands" like it's so rare to meet someone who said "oh yea I had a brain tumor." Does this bother you at all that it's very rare to ever talk to people our age about our...
Some of the best topics in brain tumor survivorship don’t come from medical practices and doctors but the survivors themselves and the conversations that happen when we bounce our ideas of one another.On September 24th, Adam Newman, a young adult survivor and mentor, was coming upon his 10th anniversary of having emergency surgery to remove his brain tumor. He posed this question to...
I had the opportunity today to speak about the Children's Brain Tumor Foundation on The Oncology Show on Doctor Radio, Channel 81, Sirius XM Satellite Radio with hosts Dr. Abraham Chachoua and Dr. Lawrence Gardner from NYU. We highlighted the challenges faced by children, families and survivors, discussed our work and, of course, encouraged listeners to support us. Thanks to Lori Ames,...
