During survivor discussions, the topics of how does a having a brain tumor fit into my life, how has it changed me, and how do I talk about it to others frequently arises. There are no right or wrong answers and no right or wrong approaches. Each situation, every personality and figuring out how to incorporate something which was out of your control into your life is different for every...
As more and more is learned about teen and young adult survivors in the brain tumor and cancer world, a lot is also learned about coping mechanisms for this age group. Self-help books and support groups are great but let’s face it, patients and survivors in their teens and 20’s are more interested in what most other teens and 20 year olds are interested in.
For this past year I have been working with CBTF young adult survivors and, photographers Annie Levy and Paul White. For our most recent project we had taken a lot of pictures, on different topics like: What matters to me? Who inspires me? What scares me? Kind of like being detectives of ourselves, afterwards we would pick out our favorite picture or one of the...
A very humbling and rewarding part about working in the brain tumor and cancer community is that I will never learn all there is to learn about brain tumors. Every day is a chance to meet new people, learn new facts or hear somebody else’s story that might be very different from my own.My work hours don’t run 9-5 as I am always interested in what’s going on in the...
