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April 2012

What Makes the Best Medical Care

By Wade Iwata
Wednesday, April 25, 2012

This past weekend we hosted a Family-2-Family (F2F) training at Children’s Hospital of Philadelphia (CHOP).   Our F2F program is designed to connect trained parent, survivor, and bereaved mentors to families who are at a turning point along their journey.  For some, speaking to a trained mentor is helpful at the time of diagnosis, while others find it helpful when their child...

Friendship after a Brain Tumor

By Tom Ha
Tuesday, April 24, 2012

 Tomorrow is our first ever chat through Friends Connection online/video chat. The topic for our first discussion will be Friendship after a Brain Tumor. In my experience of being a brain tumor survivor:

Rising Prescription Costs

By Wade Iwata
Friday, April 13, 2012

In Thursday’s New York Times, Andrew Pollack wrote an article about prescription medication costs and the ways in which some health insurance providers are raising costs for some of the most expensive medications.  In certain states, such as New York, the state passed local laws that limit the amount insurance companies can charge for prescription medications.  It was the first...

STUDY FINDS PARENTS OF KIDS DIAGNOSED WITH CANCER NO MORE LIKELY TO BREAK UP

By Stacia Wagner
Friday, April 13, 2012

 According to a study to be released in the May issue of Pediatrics, parents with a child diagnosed with cancer were no more likely to break up. The study followed the parents of 2,450 children (up to age 20) who received a  cancer diagnosis between 1980 and 1997. They compared them to 44,853 similar parents and followed them for 20 years. The study did adjust the findings for varying...

FRIENDSHIPS IN SURVIVORSHIP

By Kayla Giacin
Wednesday, April 11, 2012

Last week, I wrote a blog about the loss of independence and feelings of isolation that are often felt as a brain tumor survivor.  It seems fitting that this week, I came across a blog written by a young adult, Elizabeth Hovde, living with a traumatic brain injury from a skiing accident – although her article was mostly about facts of TBI’s, her opening paragraphs gave...

INDEPENDENCE IN SURVIVORSHIP

By Kayla Giacin
Friday, April 6, 2012

There is never an appropriate time to be diagnosed with a brain tumor or cancer however, young adults living with a life-threatening disease have their own set of issues that are specific to this crucial time in their lives when they are supposed to be gaining independence and beginning to live life – not questioning it.

MEANING MAKING

By Stacia Wagner
Friday, April 6, 2012

At the fifth annual OMG Cancer Summit, Will Reiser was awarded the “Extreme Cancer Survivor” award. Reiser is the screenwriter for the movie 50/50. 50/50 is loosely based on Reiser’s cancer experience as a young adult. During a question and answer session, Reiser discussed the impact a cancer diagnosis had on him. He said after he finished treatment he thought to himself,...

Importance of Support Services

By Wade Iwata
Friday, April 6, 2012

In a recent study in the New England Journal of Medicine, a Swedish study showed that people who were diagnosed with cancer were more likely to die from suicide or heart attack then people who are not diagnosed with cancer.  While these risks returned to normal levels a year after diagnosis, this research indicates a need for support services and programs for people who are newly diagnosed...

Online Treasure Hunt

By Haley Askew
Tuesday, April 3, 2012

CBTF is partnering with a new company called adpropo.  The company hopes to connect customers and brands in a fun way that offers an incentive for getting involved.  Currently, you can play games to earn points on the site which are redeemable for clues in treasure hunts.  Treasure hunts are where you can earn cash!  There is a treasure hunt Wednesday, April 4th at 9pm ET....

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