As we approach the end of the calendar year and the start of a new year I wonder what hopes and resolutions the friends and families of CBTF have for the coming year. Please share them with all of us.
This year CBTF held the first Teen Heads Up Conference for teenage brain tumor survivors. One goal of the conference was to build a peer support community. Being a teenager brings its own challenges related to friendships, dating, and starting to become independent. When you are a brain tumor survivor, those challenges can be even larger. The Heads Up Conference allowed the group to grow a...
Children's Hosptial of Philadelphia (CHOP) is cited for its progress in discovering a new gene linked to childhood cancer, in this case neuroblastoma. The discovery, reported online in Nature, highlights the discovery of variations in a gene as important contributors to neuroblastoma.
Please help us spread the word that CBTF is on Jumo.com. Jumo was created by Chris Hughes, one of the founders of Facebook and the chief digital organizer for Barck Obama's presidential campaign. Jumo aims to connect people with nonprofits and charitable organizations and "do what Yelp did for restaurants,” indexing charities “to help people find and evaluate them....
So I am safely back stateside after being stuck in the Delhi airport for an extra day...long story but basically it was a little hectic getting out of Kathmandu and Lukla because of bad weather and fog over the last 12 days which caused a chain reaction in my flights. Many people are still stuck so I am considering myself lucky at this point to be home. One chap I met was stuck in Lukla for 8...
Well, I can't believe it but I did it! Day before yesterday we made it to Kala Pattar at 18,433 feet (higher than base camp and camp 1 on Everest) our highest goal altitude-wise. And yesterday we hit our final goal which was our most challenging mentally of Everest Base Camp. It was amazing to have been in a place at the base of the Khumbu Ice fall where so many great people have been and...
We are at 16,400 feet in Labouche. I am kicking butt but still nervous about the next 2 days. I feel like my nose is going to fall off! Did I tell you yet that our main guide has summitted Everest 7 times and was the co-lead sherpa on the Discovery channel show on Everest called Beyond the Limits. His name is Phinjo Sherpa! I am in capable hands and feel good about that. We saw many memorials on...
Thank you so much to everyone who supported me in the Everest Base Camp fundraiser for CBTF! This trip turned out to be quite the challenge with its share of obstacles and frustration. Sounds suspiciously like an adventure…
American Medical News presented an article about parents' perception of pediatric cancer treatment trials. The article stated that many parents who decided to enroll their children in treatment trials were dissatisfied with the consent process and felt rushed to make decisions. A third of the parents surveyed stated they did not have enough time to learn about the trial's protocols. The...
So, after leaving Namche Bazaar, a real hub up here in the mountains it was off to more desolate locations where you can get a real feel for what the hard life is up here for the people of the Himalayas. We spent the night in Thame, Khumjung and Tengboche which are all at 12,000 plus feet. This was to test our abilities and acclimitize our bodies properly. And for the last 2 nights we have...
