As many of you are aware, May is brain tumor awareness month. You may have been following our facts of the day on Pinterest, Facebook and Twitter or might have boasted gray yourself either through the clothes you wear, a picture you share or by sharing your knowledge known from having dealt with a brain tumor.Some facts about brain tumors:
This poem eloquently sums up many of the feelings expressed by other teen survivors. Thanks to survivor, high school student and outstanding author, CJ Nolze.C.A.N.C.E.R.
I think that I grew up during a very interesting age of technology where over several decades I saw a complete change in how people seek information. I’m at an age where my first grammar school research project was done with a set of encyclopedias and several trips to the local library, and by the time I graduated college, I could have completed an entire thesis from the comforts of...
Last week we had a teen and young adult get together at Children’s Hospital of Philadelphia (CHOP). The group discussed advice they would give to a newly diagnosed teen and advice they would give to friends of a brain tumor patient or survivor.
This past weekend we hosted a Family-2-Family (F2F) training at Children’s Hospital of Philadelphia (CHOP). Our F2F program is designed to connect trained parent, survivor, and bereaved mentors to families who are at a turning point along their journey. For some, speaking to a trained mentor is helpful at the time of diagnosis, while others find it helpful when their child...
Tomorrow is our first ever chat through Friends Connection online/video chat. The topic for our first discussion will be Friendship after a Brain Tumor. In my experience of being a brain tumor survivor:
In Thursday’s New York Times, Andrew Pollack wrote an article about prescription medication costs and the ways in which some health insurance providers are raising costs for some of the most expensive medications. In certain states, such as New York, the state passed local laws that limit the amount insurance companies can charge for prescription medications. It was the first...
According to a study to be released in the May issue of Pediatrics, parents with a child diagnosed with cancer were no more likely to break up. The study followed the parents of 2,450 children (up to age 20) who received a cancer diagnosis between 1980 and 1997. They compared them to 44,853 similar parents and followed them for 20 years. The study did adjust the findings for varying...
Last week, I wrote a blog about the loss of independence and feelings of isolation that are often felt as a brain tumor survivor. It seems fitting that this week, I came across a blog written by a young adult, Elizabeth Hovde, living with a traumatic brain injury from a skiing accident – although her article was mostly about facts of TBI’s, her opening paragraphs gave...
