We mourn the passing of Joel Shiff, a long-standing board member and past president of Children's Brain Tumor Foundation (CBTF). He is survived by his beloved wife, Jane (also a former CBTF board member) ; children Adam (Deena), Jonathan (Laurie), and Gabriel (Ranit), and seven grandchildren. His wise counsel will be missed.
There is new and promising news in research of pediatric brain tumors. Currently, brain tumors are treated with medications, surgery, radiation, chemotherapy or a combination of any of these therapies.While these can be effective at decreasing or eliminating tumors, as many of you know these treatments come at a cost. Physical, cognitive, and emotional changes are common among brain...
As I write this I truly can’t believe this is my last day at CBTF. After moving to New York City 2 years ago I was blessed to find this job opportunity. While I was excited to accept my first real job in the big apple I had no idea how much I would enjoy it. I’m not trying to make it sound easy. There were plenty of trying times…wondering if...
I've heard of people saying that "such and such" an event is the point when their life changed so drastically that it became a determining factor of how to base all other events in their life. Sort of a before and after, if you will. A good example is 9/11.
In one way or another, every one has a plan. You might plan what you’re doing next weekend, a vacation in several months or even where you think you’re life might take you in 5 or 10 years.
I personally think it is really tough to make friends after diagnosis. I definitely know it was not easy for me after being diagnosed, I was always looked at differently, treated differently, and always made fun of. It took a long, long while to realize that It did not matter what others thought any more, just complete what had to be done. After a while it has brought...
Having a brain tumor brings up a host of issues that the patient or caregiver can be overwhelmed by. Conversations can be awkward although some topics can be more awkward than others. Survivors are embarrassed to talk about things that are very personal to them and these neglected topics can cause more grief in the long run over the course of treatments and survivorship.Being a...
We just returned from family 2 family mentor trainings in California. These trainings are designed to further active listening skills, provide education on coping styles and feelings associated with a brain tumor diagnosis and during life after, increase basic knowledge of treatment and common challenges faced by parents, siblings, and survivors and further build the brain tumor support...
