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The CBTF Community

STARTING ON THE RIGHT FOOT: LOOKING AT HOW SURVIVORS EXPERIENCE THEIR CANCER

By Kayla Giacin
Wednesday, February 12, 2014

This past weekend, my boyfriend Steven and I had the opportunity to go to the NYU News Documentary Film Festival featuring the thesis projects of graduate students at the school.What made this experience special to us was that it featured a film by a good friend and fellow survivor, Johnny Cathcart.

WHY HAS FACEBOOK TURNED PURPLE!?

By Kayla Giacin
Tuesday, February 4, 2014

You may have seen social media platforms like Facebook and Twitter turn a shade of purple the past few days.  Some of you may already know why and some might be wondering why there seems to be a purple film all over your screen!Don’t worry; it’s nothing to be alarmed about.  Except that it is.  No, you don’t need to clean your monitor, but the sudden inundation of...

What Teen Survivors Want To Tell You

By Stacia Wagner and Wade Iwata
Wednesday, January 29, 2014

Earlier this week we held a teen brain tumor survivor meeting in Washington D.C.  In the group, we talked about a recent blog post on brainline.org that provided tips from a person who had experienced a traumatic brain injury.  We then asked the participants to work together to come up with advice they would give to other people about the everyday experiences they face.  Below are...

DEFINING SUPERMAN

By Kayla Giacin
Tuesday, October 1, 2013

I'd like you to meet some of my friends. James is a college graduate, aspiring writer and mentor for Imerman Angels, Steven is a phenomenal photographer who is graduating with his bachelor’s degree this fall. Tom is a dedicated volunteer, CBTF brand ambassador and great friend. Rosalie is a passionate and creative artist and college student.

DEALING WITH THE HIGHS AND LOWS OF HAVING A SERIOUS ILLNESS

By Kayla Giacin
Wednesday, September 11, 2013

Whether you’re a current patient, long term survivor, or close family member or friend dealing with a serious illness such as a brain tumor, you have no doubt experienced very strong emotional highs and lows regardless of age, support system, or current health status of dealing with this on a day to day basis.

CONFESSIONS OF A FORMER TEEN: MY EXPERIENCE AT TEEN HUC

By Kayla Giacin
Tuesday, August 13, 2013

As Teen HUC wrapped up just over a week ago, I realized that I have the unique opportunity to view CBTF’s camps from several different points of view: as CBTF staff, as a mentor and also as a survivor.I’ve been reflecting a lot about my time at Young Adult and Teen HUC and what makes both camps, but especially Teen HUC a very unique experience.

LONELINESS: THE SIDE EFFECT THEY DON'T TELL YOU ABOUT

By Kayla Giacin
Thursday, July 18, 2013

When diagnosed with a brain tumor, parents and children are inundated with information about long term effects, medications, ways to cope with side effects and more.  One long term effect that is often overlooked can be referred to loneliness. It’s not listed on the medication leaflet given by your pharmacist or in medical research studies.I just finished reading a blog called, “...

How Do You Define Your Gray?

By Kayla Giacin
Tuesday, April 30, 2013

Understanding Life's Before and After's

By Kayla Giacin
Tuesday, March 19, 2013

I've heard of people saying that "such and such" an event is the point when their life changed so drastically that it became a determining factor of how to base all other events in their life. Sort of a before and after, if you will. A good example is 9/11.

THE IMPORTANCE OF PEER SUPPORT

By Stacia Wagner
Monday, February 18, 2013

 We just returned from family 2 family mentor trainings in California. These trainings are designed to further active listening skills, provide education on coping styles and feelings associated with a brain tumor diagnosis and during life after, increase basic knowledge of treatment and common challenges faced by parents, siblings, and survivors and further build the brain tumor support...

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