There is new and promising news in research of pediatric brain tumors. Currently, brain tumors are treated with medications, surgery, radiation, chemotherapy or a combination of any of these therapies.While these can be effective at decreasing or eliminating tumors, as many of you know these treatments come at a cost. Physical, cognitive, and emotional changes are common among brain...
It’s hard to believe that we’re almost half-way through December, Thanksgiving has already passed and the holidays are already here! CBTF is gearing up for our AYA Holiday Party at Dave and Buster’s as well as our Family Holiday Party at Beth Israel Hospital, both being held this weekend. Amidst all the excitement and busyness that accompanies the holiday season,...
As many of you know, Hurricane Sandy hit the east coast very hard just one week ago today. While CBTF is a national organization, the fact that our office is located mid-town Manhattan means that naturally, we have not only seen and experienced the extreme impact of the hurricane on this side of the country but how the impact has been on many of the families with whom we work with. ...
Children's Brain Tumor Foundation began its 25th year of service to children, families and survivors nationwide with a small celebration at its October board meeting.The theme of this year's anniversary, A Bridge to Hope, conveys our belief that the organization helps build with the children, families and survivors we serve a bridge that leads to a more hopeful place with services...
During survivor discussions, the topics of how does a having a brain tumor fit into my life, how has it changed me, and how do I talk about it to others frequently arises. There are no right or wrong answers and no right or wrong approaches. Each situation, every personality and figuring out how to incorporate something which was out of your control into your life is different for every...
This past week, CBTF hosted 12 families for our first official family camp at Happiness is Camping in Hardwick, NJ. The 4-day camp brought families from across the east coast together to share in fun filled camp activities and discussions focused on specific issues each family member faces.
I am not usually a doom and gloom person. In fact for those who know me well, I can almost always find a positive angle. Some of the art behind this is a matter of avoidance. Things which I find particularly scary or emotional, I just stay away from.
When a child is diagnosed with a brain tumor, the line between how much say they should have in their medical care and how much should be left up to the adults in their lives can be very blurry.This was the subject of a recent article posted by Common Health, written by Lindsey Kempton who was treated for cancer as a child. She discussed this topic by explaining how her parents discussed...
Today, June 28, 2012 the United States Supreme Court upheld the Health Care Reform Law from 2010. This is a huge victory for President Obama and his team, as well as for supporters of health care reform. For many people, the law is confusing and many are not aware of how it will impact them. Below is a link to a video that explains health care reform in an understandable way.http://...
