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Newly Diagnosed and In Treatment

WHY HAS FACEBOOK TURNED PURPLE!?

By Kayla Giacin
Tuesday, February 4, 2014

You may have seen social media platforms like Facebook and Twitter turn a shade of purple the past few days.  Some of you may already know why and some might be wondering why there seems to be a purple film all over your screen!Don’t worry; it’s nothing to be alarmed about.  Except that it is.  No, you don’t need to clean your monitor, but the sudden inundation of...

What Teen Survivors Want To Tell You

By Stacia Wagner and Wade Iwata
Wednesday, January 29, 2014

Earlier this week we held a teen brain tumor survivor meeting in Washington D.C.  In the group, we talked about a recent blog post on brainline.org that provided tips from a person who had experienced a traumatic brain injury.  We then asked the participants to work together to come up with advice they would give to other people about the everyday experiences they face.  Below are...

MY THOUGHTS ON HOW TO PREPARE YOUR CHILD (AND YOURSELF) FOR AN MRI

By Sylvia Phillps-guest blogger
Wednesday, August 28, 2013

A reader recently asked my advice on how to prepare for her daughter’s upcoming MRI.First I want to say that I am not an expert on this subject.  I can only relate to you my experiences with Bethany going through her many MRI’s!

How Do You Define Your Gray?

By Kayla Giacin
Tuesday, April 30, 2013

New Discovery Can Help Target Pediatric Brain Tumor Therapies

By Kayla Giacin
Tuesday, April 2, 2013

There is new and promising news in research of pediatric brain tumors.  Currently, brain tumors are treated with medications, surgery, radiation, chemotherapy or a combination of any of these therapies.While these can be effective at decreasing or eliminating tumors, as many of you know these treatments come at a cost.  Physical, cognitive, and emotional changes are common among brain...

ENJOYING THE HOLIDAYS AS A CAREGIVER

By Kayla Giacin
Thursday, December 6, 2012

It’s hard to believe that we’re almost half-way through December, Thanksgiving has already passed and the holidays are already here!  CBTF is gearing up for our AYA Holiday Party at Dave and Buster’s as well as our Family Holiday Party at Beth Israel Hospital, both being held this weekend.  Amidst all the excitement and busyness that accompanies the holiday season,...

THE LASTING IMPACT OF HURRICANE SANDY

By Kayla Giacin
Monday, November 5, 2012

As many of you know, Hurricane Sandy hit the east coast very hard just one week ago today.  While CBTF is a national organization, the fact that our office is located mid-town Manhattan means that naturally, we have not only seen and experienced the extreme impact of the hurricane on this side of the country but how the impact has been on many of the families with whom we work with. ...

CBTF Enters Its 25th Year of Service

By Joe Fay
Thursday, October 18, 2012

Children's Brain Tumor Foundation began its 25th year of service to children, families and survivors nationwide with a small celebration at its October board meeting.The theme of this year's anniversary, A Bridge to Hope, conveys our belief that the organization helps build with the children, families and survivors we serve a bridge that leads to a more  hopeful place with services...

WHAT LESSONS HAVE YOU LEARNED FROM YOUR BRAIN TUMOR?

By Stacia Wagner
Tuesday, September 25, 2012

During survivor discussions, the topics of how does a having a brain tumor fit into my life, how has it changed me, and how do I talk about it to others frequently arises. There are no right or wrong answers and no right or wrong approaches. Each situation, every personality and figuring out how to incorporate something which was out of your control into your life is different for every...

Four Amazing Days at Happiness is Camping

By Wade Iwata
Tuesday, August 28, 2012

This past week, CBTF hosted 12 families for our first official family camp at Happiness is Camping in Hardwick, NJ.  The 4-day camp brought families from across the east coast together to share in fun filled camp activities and discussions focused on specific issues each family member faces. 

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