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Survivorship

DISABILITY AS AN ASSET IN THE WORKPLACE

By Kayla Giacin
Friday, February 28, 2014

I was just reading an article about perceptions of how employers hire employees with or without disabilities in terms of skills like multitasking.  It indicated that although some employers want employees who can produce a lot of work in a short amount of time, this may only be true for certain jobs. Many employers, however, speak favorably of workers with a disability because they focus on...

STARTING ON THE RIGHT FOOT: LOOKING AT HOW SURVIVORS EXPERIENCE THEIR CANCER

By Kayla Giacin
Wednesday, February 12, 2014

This past weekend, my boyfriend Steven and I had the opportunity to go to the NYU News Documentary Film Festival featuring the thesis projects of graduate students at the school.What made this experience special to us was that it featured a film by a good friend and fellow survivor, Johnny Cathcart.

WHY HAS FACEBOOK TURNED PURPLE!?

By Kayla Giacin
Tuesday, February 4, 2014

You may have seen social media platforms like Facebook and Twitter turn a shade of purple the past few days.  Some of you may already know why and some might be wondering why there seems to be a purple film all over your screen!Don’t worry; it’s nothing to be alarmed about.  Except that it is.  No, you don’t need to clean your monitor, but the sudden inundation of...

What Teen Survivors Want To Tell You

By Stacia Wagner and Wade Iwata
Wednesday, January 29, 2014

Earlier this week we held a teen brain tumor survivor meeting in Washington D.C.  In the group, we talked about a recent blog post on brainline.org that provided tips from a person who had experienced a traumatic brain injury.  We then asked the participants to work together to come up with advice they would give to other people about the everyday experiences they face.  Below are...

BEING YOUR OWN BEST ADVOCATE

By Kayla Giacin
Wednesday, January 8, 2014

Just yesterday, I was reading about a new study that found that even though there is a significant rise in the amount of young adult survivors of a childhood cancer, general practiconers are not prepared to handle the care of these young patients.The Health Day article titled Childhood Cancer Survivors a Growing Patient Population stated that, “Improved treatment of childhood cancer has led...

DEFINING SUPERMAN

By Kayla Giacin
Tuesday, October 1, 2013

I'd like you to meet some of my friends. James is a college graduate, aspiring writer and mentor for Imerman Angels, Steven is a phenomenal photographer who is graduating with his bachelor’s degree this fall. Tom is a dedicated volunteer, CBTF brand ambassador and great friend. Rosalie is a passionate and creative artist and college student.

WHAT NOT TO SAY TO A BRAIN TUMOR SURVIVOR

By Kayla Giacin
Monday, September 23, 2013

 “I like the design on you head, did your barber do that?”“Oh, is that why you’re so weird?”“Why do you look like that?”These are all things brain tumor survivors have actually heard from people they know and strangers alike!It seems hard to believe, but when  I asked some of my survivor friends about what kind of things have been said to them...

DEALING WITH THE HIGHS AND LOWS OF HAVING A SERIOUS ILLNESS

By Kayla Giacin
Wednesday, September 11, 2013

Whether you’re a current patient, long term survivor, or close family member or friend dealing with a serious illness such as a brain tumor, you have no doubt experienced very strong emotional highs and lows regardless of age, support system, or current health status of dealing with this on a day to day basis.

CONFESSIONS OF A FORMER TEEN: MY EXPERIENCE AT TEEN HUC

By Kayla Giacin
Tuesday, August 13, 2013

As Teen HUC wrapped up just over a week ago, I realized that I have the unique opportunity to view CBTF’s camps from several different points of view: as CBTF staff, as a mentor and also as a survivor.I’ve been reflecting a lot about my time at Young Adult and Teen HUC and what makes both camps, but especially Teen HUC a very unique experience.

LONELINESS: THE SIDE EFFECT THEY DON'T TELL YOU ABOUT

By Kayla Giacin
Thursday, July 18, 2013

When diagnosed with a brain tumor, parents and children are inundated with information about long term effects, medications, ways to cope with side effects and more.  One long term effect that is often overlooked can be referred to loneliness. It’s not listed on the medication leaflet given by your pharmacist or in medical research studies.I just finished reading a blog called, “...

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