We just returned from family 2 family mentor trainings in California. These trainings are designed to further active listening skills, provide education on coping styles and feelings associated with a brain tumor diagnosis and during life after, increase basic knowledge of treatment and common challenges faced by parents, siblings, and survivors and further build the brain tumor support...
Giving Tuesday comes on the heels of Black Friday and Cyber Monday and asks that each of us take a moment during the holiday season to give to the charity of our choice. It's a simple idea and a good one, for it's easy to forget, in the haste of the holiday season, that helping those who most need our help is a wonderful gift to them and to ourselves.
Children's Brain Tumor Foundation began its 25th year of service to children, families and survivors nationwide with a small celebration at its October board meeting.The theme of this year's anniversary, A Bridge to Hope, conveys our belief that the organization helps build with the children, families and survivors we serve a bridge that leads to a more hopeful place with services...
Yesterday was the second planning/research meeting for the career development/employment program for young adult brain tumor survivors. We know pediatric brain tumor survivor face a much higher unemployment then their peers and even other childhood cancer survivors. It is our belief that providing a program which gives them career guidance and increases their team building skills will increase...
This past week, CBTF hosted 12 families for our first official family camp at Happiness is Camping in Hardwick, NJ. The 4-day camp brought families from across the east coast together to share in fun filled camp activities and discussions focused on specific issues each family member faces.
WHAT GETS IN MY WAY? Twice a month, a group of survivors gather at the CBTF office to discuss a new life topic. The discussion is done through photography and writing. Unfortunately, I missed last night’s topic of “What Gets In My Way?” I wanted to share the wisdom of one survivor, James McCue.
Our dear friend Rahmani found this article and was kind enough to translate it for us into Spanish. Below are both the English and Spanish versions of the article.Help For Children Who GrieveIt is certainly not easy to break the news to an adult about the death of a loved one.But imagine having to tell a child.FOR many children the experience of losing a family member or friend can be
Today, June 28, 2012 the United States Supreme Court upheld the Health Care Reform Law from 2010. This is a huge victory for President Obama and his team, as well as for supporters of health care reform. For many people, the law is confusing and many are not aware of how it will impact them. Below is a link to a video that explains health care reform in an understandable way.http://...
On June 4th, I was asked by the Children's Brain Tumor Foundation to represent them at the first annual Alliance for Childhood Cancer Lobby Days. The Alliance represents more than twenty national patient advocacy groups and professional medical and scientific organizationswho have come together for the purpose of bringing pediatric cancer to the attention of our elected...
