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Advocacy Efforts

By Wade Iwata
Wednesday, March 14, 2012

In one of our recent blog posts, we talked about Hadley McLean and her incredible fundraiser to help support children who are facing a pediatric brain tumor diagnosis.  It was her way of giving back to a community she didn’t choose to be a part of but that one she was forced into.  Justin Strada and his mother Terry are also giving back to this community in a different way.  Justin was diagnosed with a Juvenile Pilocytic Astrocytoma (JPA) and has been on and off treatments for some time.  In a recent article, Terry talks about her efforts to advocate for more medical research for childhood illnesses, referred to as “orphan diseases” in the article because they affect less than 200,000 people each year.  Terry’s efforts are an important aspect of helping to bring awareness to children’s brain tumors on both a national and local stage.

For the full story, please go to: http://m.newjerseyhills.com/mobile/observer-tribune/news/new-vernon-boy-victim-of-orphan-disease/article_abec38c4-66fd-11e1-813d-001871e3ce6c.html

Additionally, the Alliance for Childhood Cancer is currently planning their Childhood Cancer Action Day in DC.  The two day event will include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional representatives and their staff.  As a member of the alliance, if you are interested in participating, contact us at 866.228.4673 for more information.   

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