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Halloween Fun at the AYA Survivor Chat

By Kayla Giacin
Friday, October 30, 2015

This past Wednesday, CBTF held our monthly Adolescent and Young Adult (AYA) Survivor Chat where survivors from across the U.S.

Keeping Connected During Your Brain Tumor Journey

By Kayla Giacin
Thursday, October 22, 2015

It seems like everyone is conne

What's On Your Cancer Playlist?

By Kayla Giacin
Wednesday, October 14, 2015

Cancer and brain tumor patients of all ages use a variety of coping tools to help them with their diagnosis and treatment.  One that I’ve seen across the board – all ages, all stages of diagnosis and life after, is the use of music. 

It's Always Time to Be Aware of Childhood Cancer

By Kayla Giacin
Wednesday, October 7, 2015

Now that we're a full week into October, it is time to reflect on September, Childhood Cancer Awareness Month. We asked our CBTF families to #GoGold (the color of childhood cancer awareness), by submitting pictures of what childhood cancer and brain tumors mean to them, as well as presented facts about the devestating disease.While I would like to call our campaign successful – what...


By Tom Ha
Thursday, February 26, 2015

When it comes to Relationships and, you are a cancer survivor, it can make you feel really bad and upset for the time! I have no shame and can tell all of you who do not know, I myself is a cancer survivor of Medullablastoma for 26 + years. My tumor was in a very rare spot, from what I know is I am one the lucky ones to be here today. I do have tremors and balance problems which I was told this...


By Kayla Giacin
Friday, February 28, 2014

I was just reading an article about perceptions of how employers hire employees with or without disabilities in terms of skills like multitasking.  It indicated that although some employers want employees who can produce a lot of work in a short amount of time, this may only be true for certain jobs. Many employers, however, speak favorably of workers with a disability because they focus on...

AYA online chat

By Tom Ha
Thursday, February 20, 2014

For this past Wednesday, we had our monthly online chat for brain tumor survivors. The topic was “Friendship after being diagnosed”. I was only 8 years old when I had my brain tumor. After my first treatment, we moved to Marlboro. At that time I was in elementary school, with all new faces, I knew absolutely no one here; it was kind of scary at first. One of the friends I met was Nate...


By Kayla Giacin
Wednesday, February 12, 2014

This past weekend, my boyfriend Steven and I had the opportunity to go to the NYU News Documentary Film Festival featuring the thesis projects of graduate students at the school.What made this experience special to us was that it featured a film by a good friend and fellow survivor, Johnny Cathcart.


By Kayla Giacin
Tuesday, February 4, 2014

You may have seen social media platforms like Facebook and Twitter turn a shade of purple the past few days.  Some of you may already know why and some might be wondering why there seems to be a purple film all over your screen!Don’t worry; it’s nothing to be alarmed about.  Except that it is.  No, you don’t need to clean your monitor, but the sudden inundation of...

What Teen Survivors Want To Tell You

By Stacia Wagner and Wade Iwata
Wednesday, January 29, 2014

Earlier this week we held a teen brain tumor survivor meeting in Washington D.C.  In the group, we talked about a recent blog post on that provided tips from a person who had experienced a traumatic brain injury.  We then asked the participants to work together to come up with advice they would give to other people about the everyday experiences they face.  Below are...

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