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Relationships

By Tom Ha
Thursday, February 26, 2015

When it comes to Relationships and, you are a cancer survivor, it can make you feel really bad and upset for the time! I have no shame and can tell all of you who do not know, I myself is a cancer survivor of Medullablastoma for 26 + years. My tumor was in a very rare spot, from what I know is I am one the lucky ones to be here today. I do have tremors and balance problems which I was told this...

DISABILITY AS AN ASSET IN THE WORKPLACE

By Kayla Giacin
Friday, February 28, 2014

I was just reading an article about perceptions of how employers hire employees with or without disabilities in terms of skills like multitasking.  It indicated that although some employers want employees who can produce a lot of work in a short amount of time, this may only be true for certain jobs. Many employers, however, speak favorably of workers with a disability because they focus on...

AYA online chat

By Tom Ha
Thursday, February 20, 2014

For this past Wednesday, we had our monthly online chat for brain tumor survivors. The topic was “Friendship after being diagnosed”. I was only 8 years old when I had my brain tumor. After my first treatment, we moved to Marlboro. At that time I was in elementary school, with all new faces, I knew absolutely no one here; it was kind of scary at first. One of the friends I met was Nate...

STARTING ON THE RIGHT FOOT: LOOKING AT HOW SURVIVORS EXPERIENCE THEIR CANCER

By Kayla Giacin
Wednesday, February 12, 2014

This past weekend, my boyfriend Steven and I had the opportunity to go to the NYU News Documentary Film Festival featuring the thesis projects of graduate students at the school.What made this experience special to us was that it featured a film by a good friend and fellow survivor, Johnny Cathcart.

WHY HAS FACEBOOK TURNED PURPLE!?

By Kayla Giacin
Tuesday, February 4, 2014

You may have seen social media platforms like Facebook and Twitter turn a shade of purple the past few days.  Some of you may already know why and some might be wondering why there seems to be a purple film all over your screen!Don’t worry; it’s nothing to be alarmed about.  Except that it is.  No, you don’t need to clean your monitor, but the sudden inundation of...

What Teen Survivors Want To Tell You

By Stacia Wagner and Wade Iwata
Wednesday, January 29, 2014

Earlier this week we held a teen brain tumor survivor meeting in Washington D.C.  In the group, we talked about a recent blog post on brainline.org that provided tips from a person who had experienced a traumatic brain injury.  We then asked the participants to work together to come up with advice they would give to other people about the everyday experiences they face.  Below are...

BEING YOUR OWN BEST ADVOCATE

By Kayla Giacin
Wednesday, January 8, 2014

Just yesterday, I was reading about a new study that found that even though there is a significant rise in the amount of young adult survivors of a childhood cancer, general practiconers are not prepared to handle the care of these young patients.The Health Day article titled Childhood Cancer Survivors a Growing Patient Population stated that, “Improved treatment of childhood cancer has led...

SOMETIMES A CAREGIVER, BUT ALWAYS A MOM

By Joan Shannon, guest blogger
Monday, November 25, 2013

To set the record straight, my favorite color is not pink. Its yellow (although purple is a real close second). And not the bright sunny yellow that I used to want to paint on my bedroom walls when I was a child. I settled for painting ceramic cutouts of my initials in the brightest, sunniest yellow I could find and hung them on my bedroom wall when my parents were less than sunny about the idea...

DEFINING SUPERMAN

By Kayla Giacin
Tuesday, October 1, 2013

I'd like you to meet some of my friends. James is a college graduate, aspiring writer and mentor for Imerman Angels, Steven is a phenomenal photographer who is graduating with his bachelor’s degree this fall. Tom is a dedicated volunteer, CBTF brand ambassador and great friend. Rosalie is a passionate and creative artist and college student.

WHAT NOT TO SAY TO A BRAIN TUMOR SURVIVOR

By Kayla Giacin
Monday, September 23, 2013

 “I like the design on you head, did your barber do that?”“Oh, is that why you’re so weird?”“Why do you look like that?”These are all things brain tumor survivors have actually heard from people they know and strangers alike!It seems hard to believe, but when  I asked some of my survivor friends about what kind of things have been said to them...

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