- In Treatment
- After Treatment and Survivorship
- CBTF Publications
- Loss, Grief and Bereavement
Your donations to the Children’s Brain Tumor Foundation allow us to both fund important research that will one day lead to a cure as well as develop and run many programs that support families during every stage of their brain tumor journey.
Provide critical funding to the Children’s Brain Tumor Tissue Consortium (CBTTC), an international, collaborative research initiative that not only collects all types of childhood brain tumors and performs analysis using cutting-edge technologies, it also shares this data with the scientific community at large so that new and improved treatments can be developed by anyone, anywhere. We are able to offer this critical funding due in large part to the support of the International Licensing Industry Merchandisers' Association (LIMA).
- Send teen and young adult brain tumor survivors from across the US to the Heads Up Conference, a camp specifically for brain tumor survivors, where they learn about navigating life after a brain tumor when it comes to things like educational challenges, career transitions, peer relationships and dating, and so much more. Meanwhile, they bond with other survivors and realize that they are not alone.
- Provide crucial information and support to newly diagnosed families through the publication and distribution of the CBTF Resource Guide for Parents and Families of Children with Brain and Spinal Cord Tumors, as well as Parker’s Brain Storm. The Resource Guide is given to families through virtually every hospital across the country that treats pediatric brain tumor patients. And, it is published in multiple languages.
- Continue to develop and hold our annual Just Us: Father and Survivor Retreat. This unique camp, currently in its fourth year, offers Dads an opportunity to meet other Dads as well as participate in activities with their children.
- Offer one on one and community support to bereaved families through mentor connections, support from social workers, our new Surrounded By Love Quilting Program, as well as many other unique opportunities throughout the year.
- Expand our programs to Minneapolis and Washington, DC where we work to build communities and provide tools which will increase independence, social skills and advocacy for families. In 2017, we are hoping to expand these programs to the San Francisco and Philadelphia areas.
Work with a team at Fordham University to investigate coping in siblings of long term survivors. We are also working with a team from University of Illinois Champaign-Urbana, Children's Hospitals and Clinics of Minnesota, and University of Wisconsin to look at college success rates and needs for brain tumor survivors.
These are just some of the programs and research that CBTF is able to offer because of the support you provide!