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Mission Children’s Brain Tumor Foundation, a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Information Knowledge is critical for families to access expert care and ensure quality of life. Our free publication A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors is now in its fourth edition, and is full of practical information to sort out the complexities of medical procedures, interruptions in school and social life, and uncertainty about the future. CBTF co-sponsors conferences for families, survivors and health care professionals, offering the latest information about research, treatments and strategies for living.
Support and Advocacy Support means renewal and strength. When information and community resources are shared, families and young survivors find ways of adapting and improving their lives. CBTF offers a toll-free support line at 866-228-4673 where you may speak with pediatric neuro-oncology social workers. Programs including CBTF's Family 2 Family Network allow families to share their experiences with those having similar concerns. Parents become better advocates for their children, and survivors become stronger advocates for themselves. CBTF hosts and sponsors events, such as the Kids Cruise or Brain Tumor Family Camp at Happiness is Camping, which offer families fun while building relationships within the community.
Research Only scientific research will identify the causes and lead to effective treatments for brain tumors in children. CBTF funds cutting-edge research by scientists at top academic medical centers. Their discoveries hold the promise of improving the lives of affected children today and discovering the means of prevention for future generations.
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Grants CBTF has awarded over $5 million in grants for basic and clinical research related to pediatric brain and spinal cord tumors. Also, over $625,000 has been given out in Quality of Life Grants.
For more information: Children's Brain Tumor Foundation 274 Madison Avenue Suite 1004 New York, NY 10016 866-228-4673